Is this POTS?
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Contd potsy symptoms yet like gastroparesis. Not everyone gets it all. Read the criteria for POTS. I'd like to know his bp, his NE, blood volume, urine sodium. I'll watch again to make sure I'm not misunderstanding. He needs to get to a competent EP & some Hosp that does autonomic tests to inform tx. Low BVA, h-pots, etc, need specific tx.
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Further, id like to know his blood volume and NE Levels. H-pots ppl can be very extreme & very unstable in their vitals & overshoot then go down or we older patients, end up with svts, VT, atrial flutter, PACS,PVCS, u name it. So a sudden brief abrupt change is quite possible & needs to be taken seriously. I have an ILR & my vitals go bonkers. He needs to monitor his bp & pulse pressure & record his vitals timed with meds & time of day & any other symptoms. He may not have all the other potsy j
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Yeah, it's way pots. Friends, pots doesnt always do the same things in everyone. He's a guy and he appears to be older than the typical very young women who have pots. Those of us who are older have some weirdness with our hearts trying to stabilize. Also, his readings may be affected by medications & time of day, not to mention we have no idea abt his bp cardiac output. Plus, that watch is very good..no bells and whistles..I noticed the simpler polars are best for pots.
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Hey Simmy!
Yeah, that looks like you have POTS.
Better do some crunches every day to help you out!
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im sorry for at one time telling you that it wasnt POTS...i was just hopeing that it wasnt cause i dont want anyone to live how i feel....i hope your symptoms get better...and sorry i didnt exactly know what i was talking about at the time...but now i have the smarts and have taken enough meds to try to help you on what has helped me and what hasnt...but everybody is diff so i hope i can help
genefirst 3 weeks ago
@genefirst No need to apologize; I too, prior to absorbing all I could about this illness, would have thought that a drop (or rise) in heart rate as seen in the video would be due to a malfunction, as it seems to be illogical. We now know better (and a great deal more than most doctors). While most of those inflicted with POTS later in life (like me) are destined to battle it until death, specific meds and exercises can indeed improve our condition to a somewhat manageable level. Good luck!
simbofats 3 weeks ago
One last thing, I was dxd correctly by a brilliant EP, who took my vitals supine, sitting, standing & asked me all the right questions. I then was shipped off to the big centers & gurus, & had the expensive tests to confirm the obvious. I get SEVERE heart symptoms which started as simple sinus tachy. I'm not your grandma but its been before the avg potsy was born since the days I fainted out cold in high school hallways without tachy & my dx was "easy fainter."
Suezqpots 2 months ago
@Suezqpots: Yeah, it's way POTS! I'm now taking only Propranolol and Desmopressin -- the two meds that work best for me -- and along with Dr. Levine's exercise recommendations, I'm experiencing some improvement. But yes, it is constantly changing and lately gastroparesis (and its nemesis -- the opposite) have reared their ugly heads too. Good luck to you, Suezq.
simbofats 2 months ago
no...ur watch is mis reading...it wont drop that fast...and pots is alot worse than just heart...i have gasteral intestinal issues, tremors mainly in my hands and sometime full body,head aches and many other things...it has taken my life and through it in the crapper so good luck and hope its isnt pots...its not fun at all...
genefirst 7 months ago
@genefirst, Yes, it turned out it most definitely is POTS and the watch was perfectly accurate. The heart rate does indeed drop like a rock when I squat or lie down, as blood instantly flows back up where it should be. And yes, while POTS is defined by the rise in heart rate of 30bpm+, that is not the only disabling symptom; I also suffer from the headaches, nausea, stomach cramps, the shakes, numbness and all the other fun stuff. Good luck to you too.
simbofats 7 months ago