SSPTV Kapes Family Sanfilippo Syndrome
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8:06
Hunter Syndrome (part 1)by gamedrawish69,091 views- 10:00
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- 3:22
ADDIO MIRKO SANFILIPPOby tropycalking27,276 views
- 5:05
Divorce Family Therapy Videoby PsychotherapyNet4,381 views
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Got Hope: Living with Hunter Syndrome (MPS II)by debpurcell2,850 views
- 3:16
Good times despite Sanfilippo Syndrome!by journalist20053,105 views
- 1:14
Wallsmartby SoZachsHere315,380 views
- 4:03
Scott McCreery - Auditionby ScottMcCreeryFans3,460,939 views
- 0:42
SANFILIPPO SYNDROME mps lll Tommy Thompson (1).MTSby kevin6000000782 views
- 2:35
Cornelia de Lange Syndrome Awarenesby madoldkid23,540 views
- 2:35
In Brooklyn, A Mother Defies Sanfilippo Syndromeby josebayona68813 views
- 3:10
Mucopolisacaridosisby Ghumberto32,044 views
- 3:18
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SANFILIPPO SYNDROME mps lll Tommy Thompson (3).MOVby kevin6000000448 views
- 2:54
Tshotsholozaby EOUChamberChoir850 views
I am not writting this to bring more heartache to your family. Just to let you know that there are families out there that are with you in your journey.They are beautiful,loving children that can & will teach us & those around them. Jamie-Lyn was a teacher to all. She touched many lives, as I know your beautiful boys already have & will continue to do...Sincerely Victoria Marchant <3
Victoria1009 1 hour ago
I live in Squamish BC Canada. Our daughter Jamie-Lyn was born with Sanfilippo 'A' in 1983. Jamie never slept & was increasling showing signs that something was wrong. By the time she was 3 we got the devasting news. Watching your children brings back so many memories. Jamie-Lyn passd away 15 years ago at the age of 14. We have another daughter, Jennifer (now 25) who was not born with Sanfilippo.
Victoria1009 1 hour ago
they are 2 of the most adorable boys i have ever met :)
itstherugbys 1 week ago
i have managed to watch the video it would not work to start with and thank you for all the infomation on this video xxx
missiemoo01 1 month ago
can some 1 please explain in symple tearms what this syndrome is all about and what happens please my best friend as just found out her 4 year old son might have it so im looking out for any infomation about it if you have a spare few mins to reply i would really apricate it thank you very much xxx
missiemoo01 1 month ago
My brother and siser have this show this to your friends and help them
jflys423 2 months ago
mi mayor motivasion es mi hija ,...... un angel del cielo nos mandaron!!!!!!
gomezlandia1 1 year ago
i have a teacher with two children with the same syndrome. and i am all in to voting for u!! my teach is an inspirartaion to me and i want to help her as much as possiable beacause i no her children mean the WORLD to her.
performeralways 1 year ago