Hives - Delayed Pressure Urticaria - Part 5

This is a continuing update of my progress with Delayed Pressure Urticaria (DPU) and Hives. I actually finished this video about a week after the making of Part 4, however, due to my schedule, I'm only now getting around to uploading (10/02/2009). This video primarily shows the effectiveness of Singulair, the medication that I'm currently trying. As noted in the video, it seems to be holding back any major outbreaks, however, I'm definately not hive free or "delayed pressure" free. After surfing for about 4 to 5 hours in the morning, this video shows the effects that I was experiencing later in the evening of the same day. Since this video, I've been taking a 20mg dose of Prednisone per day due to my recent passion for surfing. My doctor has advised against this continued dosage and once again has me on a "taper down" of Prednisone for the next few weeks until I am safely weened. His recommendation at the moment is to get off of the Prednisone and experiment with a combination of Singulair and Zyrtec. He also had mentioned a recent case involving someone who was suffering from DPU and had good results from a drug called "entanercept". I've included a couple of links below that provide information on this drug. I've had to delay my plans to do a "liver cleanse" until my schedule lightens up a little. My next update will either be of my next dreaded "outbreak", or will be the "liver cleanse. Until then, best wishes and thanks for watching. Keep the faith my fellow sufferers.

http://en.wikipedia.org/wiki/Etanercept

http://en.wikipedia.org/wiki/Tumor_necrosis_factor-alpha

Category:

Science & Technology

Tags:

• hives
• autoimmune
• delayed
• pressure
• urticaria
• outbreak
• fatigue
• liver
• cleanse
• freak
• singulair
• prednisone
• zyrtec

[ronjoe1]

Don't have any advice ( I'm dealing with a hive-y foot just now!), but wanted to thank you for posting your trials and hope you find something that works for you. From what I'm gathering, it seems what works for one may not help another, so we can't even rely fully on that! But, hopefully with awareness comes results! *fingers crossed* :)

[grizzlemeat]

@ronjoe1 thanks for your input.....i'm hoping to have something helpful in upcoming weeks.  Hopefully, you're situation will tone down with no lasting impact. Best wishes friend!! Keep me posted.

[ydila]

Thank you for sharing this with the world. I'm from Belgium and it seems like I'm the only one to have DPU in this country. I have it for 26 years and when I went to doctors, even in University Hospitals, they listened to me as if I was an alien or a women who looked for attention. Since a year I am taking pictures and gather them all togheter to get a real docu. I didn't go for years to doctors because I'm tiered to pay all these doctors without any outcome to cure. I try to live with it !!

[grizzlemeat]

@ydila Thank you for sharing your experience. I completely understand what you're going through. Due to a change in my employment, my insurance coverage has changed; as a result, I'll be going to a new doctor. Hopefully, I'll have something new to share. Currently, I'm taking 10mg of Prednisone per day which keeps the symptoms calm. Also, I've been on a very strict diet and exercise program...I'm hoping to post a new video next month with an update.

[ryanalfred]

I have been suffering with this for years. Your story is just like mine. My DPU was severe and became worse . After the past year of trying everything Singulair, hydroxizine, reactine, zantac and cycle after cycle of prednisone, I have found relief in PLAQUENIL. Took about 3mths to work( very slow acting-stick with it), but now I am free of this condition. It is amazing. I can't remember if you tried this, if not I would ask your Dr. Take Care

[grizzlemeat]

@ryanalfred Thanks for the info. I'll look into this. I'm still dealing with the same symptoms. Keep in touch and let me know how things go.

[bubonicnate]

Anywho, if you figure anything out let me know. Acupuncture mildly helps me - but my doctor has never been physically rough with me in anyway near the ways you described. He just puts the needles in and then sometimes in the bad spots will hook up an electro-stimulator to some of the needles. He says my Qi is all screwed up - I have no idea what that means but I roll with it. I can't really get massages because I will break out, so the acupuncture is a good alternative way to relax muscles.

[bubonicnate]

I've got DPU - hope you figure something out -- I've basically given up. I think a lot of people don't realize how much self control it takes to walk around with hives and stay calm. The swelling, itching and burning can be overwhelming sometimes. If there is too much pressure in any one spot on any given day, I end up breaking out all over my body. It starts localized where the pressure was but then, if it was bad enough, it spreads into my joints and muscles and all over my skin.

[xRhapsodyBluesx]

I have something very similar to your condition which I have been a suffer since a young age of 12 im now 23. My doctors call it dematographism uticaria, even the slightest pressure of holding someones hand or yawning will cause me to break out in hives around the general area. I have been on singulair and prednisone yet my hives still could not be controlled. I currently take xantac and xyzal to manage my hives, without it my whole body would be consumed by hives.. Good luck on your journey!

[ronjoe1]

Just wanted to thank you for posting. I just starting having outbreaks this year after big cake projects (lotsa standing and kneading). I kept mentioning to the doc's that it seemed pressure triggered & just got dismissed. So, just hearing that this is something that happens to others at least lessens that stress of me just being a crazy person!

[twodice416]

my doc prescribed zantac (!) yes, the anti-acid is apparently also known to take care of the symptoms of urticaria, i am on it for the last 3 days and have noticed minor improvements, and have not had to take any anti-histamines that i normally take to help me deal with the hives... so yeah, not sure if you want to give that a try

[ncarolina76]

Thanks for all the videos! I have had DPU for about 5 years. I have not been to the doctor because I don't have insurance. I just self diagnosed my self by finding stuff like this online. My foot is swollen today. It hurts really bad to walk. I get little hives on my body for no reason some times. But also if I have any pressure I know it will be hurting later. Sometimes if it is a bad flare up it will hurt into my muscle also and very painful!