Alesia in the water
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All Comments (14)
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That is a very strategically placed toy lol It looks like she has pretty intact facial muscles seeing as how she's able to raise her eyebrows and smile
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She's beautiful! So nice to see her having fun in the water! BIG hugs from Canada Alesia!! XXXOOO
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so pretty love her eyebrow motions!!
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que bueno ante la mejoria .
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oh how adorable!! made me smile to see her seem to be having so much fun!!
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Beautiful girl :)
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what happened to her?
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what have this child?
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It is called Spinal Muscular Atrophy. It is a horrible disease that affect all the voluntary muscles including breathing and swallowing. Currently there is no cure :(
AnghelDaniel 1 year ago
The trach does not have cuff and there the leakage between the tube and trachea allow air to escape into the vocal cords. She also learned how to use the ventilator to help her speak. (when disconnected she does not have enough power to make any sound). We thought that she would never speak after the tracheotomy and it was a nice surprise to hear her talk again.
AnghelDaniel 1 year ago