So Basically...

The basics of the disease I have called Morquio Syndrome.
Sorry there was no music this time, but copyright stuff scares me... lol
And it went on longer than what I thought it would
To find out more this is where I got my information (except for picking my Dad's brain): http://www.nlm.nih.gov/medlineplus/ency/article/001206.htm
Edit: Someone made me aware that the sound is lower on this one, I realise this and will make it louder next time

Category:

People & Blogs

Tags:

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• video
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• Morquio
• Syndrome
• waist
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• wheelchair
• handicapped
• disease

[luckygal12]

hi ya, ive morquio to, so does my younger bro, were from Nireland, we both are very simular to yur type, not that short but not tall either, and u get on so much like my bro its unreal lol. im 4ft 7, my bro his 5 ft 2. you made me laugh so much, really funny, i jus got myself a wheelchair cause time is getting bad and im 34 now, sometimes i get very sore and cant walk at all. so it comes in handy. i never thought unitl tonite to type in morquio, glad i found u hehe

[WaistHighView]

@luckygal12 Again, I am glad that I could make you laugh :D

I have to say that I don't even know how tall I am myself xD but it really surprises me that you just got a wheelchair when you are at your age despite being relatively tall for morquio people; though thats brilliant for you, as I've found that when I've met other 'tall' morquio people they don't walk either. Any good tips? xD

[AmericanGirl9201]

I have it too

[WaistHighView]

@AmericanGirl9201 That sucks, I hope you're able to cope :)

[WaistHighView]

@SunriseDawn I'm so sorry that the audio is so bad... I've learned from this mistake xD

[SunriseDawn]

@Unitedforce0 .... I'm in total agreement... couldn't hear much of anything to save my life!! But hey, at least with Having Morquio and being 39 yrs old, I already know what it's about. I've participated in a longitudinal study just a souple weeks ago and posted my walking and stair climbing tests - maybe you'd like to check them out?? ... It was a great experience - hope that gathered information will help future generations! It's my legacy!

[lyricsxxx101]

I read Freak the Mighty! i cried so hard at the end! Oh my goodness! so sad! but a truely wonderful and touching story. Read it! But if ur too lazy to read it then watch the movie!

[AmericanGirl9201]

@WaistHighView Thanks

[loves2sing4sure]

you're a very inspiring young man ; )

[WaistHighView]

Yes I've seen the movie (maybe I should read the book...) I'm glad you find it interesting and that you found my video