Intracranial Hypertension

http://www.firstgiving.com/nikkigalagher I have Intracranial hypertension- a brain disease that has no cause and no Cure YET... help me raise awareness and together we can find a cure... visit my donations page and share this video with your loved ones and your Doctors...

Some symptoms -
Numb toes, feet and fingers while lying in bed. Pins and needles as well.
Pressure behind eyes, eyes tearing.
Visual disturbances.
Feeling of pressure in head, feels like my brain is being squashed
Forgetting words, little one's like pen.
Loss of short-term memory - what I am doing, where am I?
Vertigo, loss of balance with eyes shut.
Tailbone aches for hours/days.
Back of neck aches.
Headache, 24 hours a day.
Migraines on a regular basis.
Double vision
Thrumming noise in ears (actually the sound of my own heartbeat).
Lethargy that lasted months.
Visual blackout that lasts several seconds after standing up.
Dizziness on standing/squatting.
Eyelid twitching, small mini seizures involving arm, leg or head movement.
Dry mouth.
Water retention - fat , sore feet
Weight gain.
Night blindness.
Non-thought, when you try to think through a head full of cotton wool.
Feeling of disorientation/confusion.

If you have more than 3 of these Symptoms please see your Doctor and ask for a refferal to see a Neurologist (study's the brain) or ophthalmologist (who will be able to look into your eyes and see the pressure on your optic nerves). The only way that IH can be ditected is from a lumber Puncture the needle in your spine is hooked up to a tube and is held vertical and the pressuse from the fluid will rise the fluid up the tube giving you a pressure reading. normal is 5-10 my first reading was 28 (3 times normal levels) and has been as high as 48.
If your doctor is not aware of this disease and is dismissing your symptoms see another Dr.. this is your body and you must take charge of it.

Category:

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• IH
• movie
• full
• intracranial
• hypertension
• BIH
• VP
• shunt
• brain
• surgery

[TheMFDGrind]

@missstary I was told that to that normal pressures can be anywhere from 15-20 ...mine were 30 way high nut im glad i dont need surgery but taking these pills SUCKS

[missstary]

i got told that the normal presher is 15-20

[blackjack18md]

omg

[anaestrellitaluna]

Can someone tell me how does it feels at the beginning, my 6 year old was just diagnose with it , and he was having headaches every day (3 or 4 times) after Diamox he is feeling ok, but some days he is great jus a normal kid and other days he feels terrible(bad headaches and really tired) This is the way IH is?

[bass109]

pray before operations, let lord jesus help them!

[fourlonglostfriends]

I like the editing on this. Thanks for submitting for use in IH Projects. We can make a difference.

[shagottaholla]

Just got diagnosed with this today Im 18 Spent the last 4 months of hs out of it bcuz of extreme headaches and other symptoms My doctor says Im a weird case bcuz other than the headache I had no symptoms of this. I've already been taking Topiramax for the last 3 months, for headaches, but im starting the diamox now too. Im starting college in the fall and hope I will be able to live a normal life. My doctor still thinks something else is wrong too though bcuz of fatigue and stuff

[kbenge89]

@Muhajiba I was dianosed last month. So, since then. I was put on it to control the headaches. I too have never had a seizure. I was put on diamox b/c (I believe) the pressure behind my eyes (I was going blind in my left eye)...I'm not really sure. I've yet to do research b/c I'm just now regaining my vision. I'm having several different side effects too. Mainly the upset stomach and fatigue. :( It sucks that you've been on these meds for so long!