Cole's Crew Neurofibromatosis

Great Steps for Neurofibromatosis

Category:

People & Blogs

Tags:

• neurofibromatosis
• nf
• naperville
• great
• steps
• aurora
• sugar
• grove
• kaneland
• john
• shields
• tumor
• surgery
• scoliosis
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• length
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• hope

[G10929]

Good luck from gio

[forgotin811999]

I was diagnosed with NF 1 when I was 4 years old...

[littlemexicantheif]

i have some turner on my foot from this i wantb them checks before the advance to the p[oint were it too risky to remove

[kirstyrand1]

i have it i hate my mum died of it , i raised over 500 £ for the nfa, well done , kid your amasing

[MrTheWitt]

I have Nf 1 and there many people trying and fight to find a cure.One day there will be one!I'm on facebook at eddie c. witter.

[SweetBrwnSuga]

@beebee890 me too, i have nf1

[comedydork123]

your a a good kid

[ikerbeast666]

i am 18, an i got NF i havent got serius complications, just the spot sand a small escoliosis. i should have a tac every two years but all the prevention is few. even if the risk of having a strongcomlication is on 25%

[Sexyhardcorechick420]

ya its hard to go through. i ahve not been to the doc in forever for this nf1 but im pregent and i ahve an mri so hopfully nothing comes up.

[Sexyhardcorechick420]

Cole buddy i wish you all the luck. i have nf to its hard to live with. But dont let it get you down you can do anything. your awesome keep spreading awareness mybe someday more people well know and understand what people with nf go through.