trigeminal neuralgia

trigeminal @ JHU

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[bubblybabs]

Just been dx with this... Pain would last for hours, not minutes... It affects the whole right side of my face, my mouth, my tongue... I taste blood when there isn't any... It's horrible... At first, I thought it was a horrible toothache... My poor kids watched me cry as it throbbed... Doc put me on lyrica... I'm 46... I understand you go through periods of remission with this and I am apparently in remission... I live in fear of another attack...

[ch0828a]

I am so sorry to learn of your diagnosis. My wife had periods of remission, that would not really be remissions, the pain would just be under control usually through massive amounts of painkillers, which left her other vital organs at risk. Ultimately surgery was the best option for her. She had Glycerol, Gama ray and Microvascular decompression.

[ch0828a]

Everyone is different, but as we researched, the patients with the highest sucess rates tended to be the patients who got MVD.

[ch0828a]

there's an 80% shot of being cured for life. I would recommend however taking it slow, try the meds, then the smaller operations and then see where you are. Take it like a step ladder. Ultimately it took my wife 5 years to get to a cure, during that time she graduated college and landed her first job. I won't lie it's a horrific struggle, but family and friends and a good medical team can pull you through this. Good luck!

[JUDYFAN61]

i'm so sorry

[ch0828a]

It's okay, you're among friends who've been there, done that.

[msthang705]

I have suffered TN for over two yrs,,,,I like this docter, most do not understand how painful Can we say EXCRUCIATING!!!I I want this procedure

[1997everything]

I'm almost 15 and have been suffering with tn for over a year. It is complete and utter agony which controls your life due to the fear of triggering another attack. Not many people understand it my local doctor barely knows how to help here in the uk.

[phocjame]

@Bokicazver Woah, that's an old post. But thank you for responding anyway :)

[Bokicazver]

@phocjame The 10 times worst is TRIGEMINAL NEURALGIA !!!

[Bokicazver]

@gismosesse After 12 years of nightmare, I decided to go to MVD ! Come home after MVD and 3 days in hospital , and I am ALLREADY pain free and HAPPY ! People , don't suffer and waste your life...

[Bokicazver]

@nylawyer55 For the first step , she must ask doctor for Tegretol. If it helps, this is Trigeminal Neuralgia. Tegretol is THE BEST ! If not help,there is something diferent. Do not let dentist to pull her tooth out !!!

[sixeye666]

im pretty shore i have this condition, i went through depression and panic attack it really did make me loose my mind. i now y they call it the suicide condition because ive been there.

i wanna no if tn or atypical can effect the sensors in your face because i get a strange high feeling its really weird.

[atergonomico]

Hello Everyone. My dad suffers from Trigeminal since 2005. He owned a gas station in my country, Venezuela for more than 15 years, so I guess the contact with gasoline helped a lot that syndrom to beging. To be honest he rules out any medical help because he had tried everything, with no good results. My question is: Are alternative treatments like accupuncture effective in these kinds of diseases? I`d like to have feedback, I´m really worried. Can´t stand seeing him like that!