Another trip to the hospital... Living with Sickle Cell

As most of yous already know i have sickle cell diease and this past week in the half i have been in the hospital fighting to get better and I just wanted to put out an update and share the story with some of my friends out here with Sickle cell like me!

Category:

People & Blogs

Tags:

• Sickle
• cell
• nephritina
• hospitalization
• pnemiunia
• blood-clots
• painful
• withdrawl
• getting
• better

[yharneise]

Hi Nephritina, I feel your pain.  I have sickle cell and DVT also. I was just in the hospital for 5 weeks. I have been thru my share of good and bad doctors and nurses. It's frustrating when the doctors don't give you enough pain medication to control your pain. I take dilaudid and phenergan in the hospital. I normally take 4mg of dilaudid every 3hrs. How much dilaudid do they give you in your PCA pump and does it control your pain adequately?

[nephritina1]

it depends on how much pain i have i recently have be place with a doctor at the hospital who acually talks to me and he listen so if im feeling better or worse he adjusts the medication as needed...

[E7V2M0]

I have Sickle Cell as well, how often do you get sick?

[sdhadg]

baby girl, I had my sister watch your videos because you break my heart. She is now getting a government grant to work on this very disease. I pray every day that there will be a cure very soon. I know I will never live in your shoes, but after my sister told me what is going on in your body i am in awe of how brave you are. I am inspired by you, as people should be. You bring a voice to a problem that is in dire need of being addressed.

[JoieZReign]

Your Dr. should listen to you. I know it's hard to find good doctors for us sicklers. I take MS (morphine sulfate) everyday...and if hospitalized you should have a morphine drip miligrams depends on severity of pain. I went through a bad withdrawal with an a-hole of a Dr. as well, while my Dr. was on vaycay. we are strong & we will maintain thru it all. Also, most of the nurses seem to be jealous i THINK THEY REALLY WANT the meds. I take dilaudid 4 mg. evry 3 hrs. as needed as a breakthru med.

[FreakishlyDuckie]

No sickle cell for me. But, I have a birth defect called Spina Bifida, and I totally know how it feels to be in the hospital for a long time. And yes, most nurses are bitches...I like the student nurses better.

=]

Good luck, hope you stay well!

[perplexx1]

yep i feel your pain as i also suffer from SCD.. but in london its like we sufferes dont exist... its so hard to live with sickle cell!!