Cry of Pain
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Yes Linda, I hate it when someone in good health says, "We're all tired". Those constant seizures must be horrible. You & Greg are a great team in advocating M.E. Thank you so much. A fentanyl patch, neurontin & vicodin for the break through pain has helped me. Dr. John Chia, in CA, put me on Lorazepam for continuous nausea! It is working. I have Temazepam & Trazadone for sleep, and I am not only sleeping, but dreaming, as well. I am not always awakened by the pain as I was for 30 years.
LuvTeal1 1 year ago
I salute you both for your tireless efforts to raise awareness of ME. Your videos are wonderful, I love watching them and I admire the relentless passion you have for making a difference.
You're both an inspiration! Best wishes x
mesufferer 3 years ago
Well done for making this Video Linda. It is terrible that due to Psychiatry you are not able to be treated, and even worse, there are people who impersonate you and then recover with exercise - the very thing that makes ME patients worse.
These bogus ME patients are as bad as Psychiatrists, because they know people like you exist, and don't give a damn.
luminescentfeeling 4 years ago
Hi Linda - I agree with everything you say here. Am writing this wearing a neck brace and in agony all over and have just heard from you that the NICE
guidelines are out and are dire. So things are about to get worse. What a gutsy lot we are to endure all this!!We need a few successful cases of medical negligence because of GET to change things forever.God bless love Theresa
mercy3000 4 years ago
I'm pleased that you were at least able to get a benefit(however small) from being out in the sunshine.
I can relate totally to what you say, Linda. It is SO frustrating that folk can dismiss our suffering just because they don't have visible evidence. I continue to remember you and Greg in prayer - I'll NOT give up on you! God bless, Nigel
ivortick 4 years ago
That's exactly what I've been trying to explain to my family. With me, it's been about seventeen years of this disease. And they still treat me like I'm making it all up.
Thanks for making this video.
Carrigon 4 years ago