Another day, Another heartless doctor....

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Category:

Nonprofits & Activism

Tags:

• hospital
• clinic
• doctors
• healthcare system
• america
• canada
• adrenal insufficiency
• primary ovarian failure
• ehlers danlos syndrome
• joint pain
• osteoporosis
• awareness
• sickness
• chronic illness

[sn0white68]

I know what you have gone through. I have had doctors over and over tell me It is in my head. And then I have them look up P.O.T.S. Most of the doctors have never even heard of it. It angers me how heartless these people can be. I hope you have a better experience.

Ruth

[ridiculyss]

@BrittniLeigh21 It's horrible that we all seem to have gone through that at one point or another. I'm so sorry that you went through it, too. I hope you've managed to find an understanding and knowledgeable doctor since then, and if not I hope you find one soon! They seem to be few and far between. =/

Best of luck with everything!

[BrittniLeigh21]

@ridiculyss I had Mono when i was in High School and then two years later got VERY sick with POTS I was told over and over that it was in my head..faking etc :(

[ridiculyss]

I'm 27 and it took over 10 years to finally be diagnosed with POTS. I've had it since I was born but getting mono in high school really sent it spiraling out of control and I've been feeling worse and worse every year since. Now that I finally have a diagnosis I'm still not taken seriously and have given up on doctors. I absolutely know how you must feel. It's disheartening knowing that people in health CARE generally don't seem to care at all. Wonderful letter and I wish you all the best! <3

[rx2mozart]

I'm sorry and amen! 

[DysautonomiaMD]

So sorry things are still bad at times. Just keep on sharing, Kyli. You are helping so many people. LoLv.

[JESME]

I am very glad that you wrote to the hospital. I am so sorry that you HAD to write to that hospital. Did you get a response from them? What you experienced was so horrific and not something anyone should have to experience from "professionals". I do feel your hurt, your sadness. I do understand as I have had similar experiences. Keep sharing! God bless you!

[ccdmonkeygrl]

This made me cry because I have also had a similar experience. I feel your pain.

[kategeorge9]

Sorry to hear you've had such a terrible experience...I've got tears in my eyes hearing how bad you've been treated, and thinking of all of us who have been treated like a psych case. Sending you a GIANT hug and thanks for sharing and remaining upbeat (and I pray you don't have familial dysautonomia and you can find someone one to help). xox

[CNDbutterflybabe]

What a WONDERFUL letter! I wish I could write a similar letter to all those drs who treated me like that. All the drs who told me it was in my head (despite the fact I was hemorrhaging in my lungs at the time....) You have such courage! I can't wait ti hear what (if any) response you get! Stay strong!!!