Our trip to Disneyworld for the SMA Conference. It rained the night of a big SMA event. We were all at Epcot and had to hang out in various stores until the rain stopped. It never did stop raining and we wore ponchos and bought umbrellas to make it back to the car and watch the fireworks
Nora has SMA. SMA (spinal Muscular Atrophy) is a disease that affects the muscles in the body. It weakens all muscles even the ones that make Nora swallow and cough. SMA is a terminal disease with no treatment of cure. Nors's time left is limited, but we intend to make her have all the fun she can. She is the greatest daughter in the world to us. Visit Nora on her website: http://www.goodentree.com or read about SMA on http://www.insideSMA.com.
@Repmow agreed
random123346 4 months ago
I will keep Nora and all the others with sma in my prayers.
Repmow 7 months ago
Nora, it looks like you had a great time!! You are a beautiful and amazing little girl.. What a special gift you are to this world!!!
Frazierj44 7 months ago