LukeSeizures120509Part2

Luke having tonic clonic seizure. We filmed this as the hospital asked us to film his seizures before going in that day for an EEG.

Category:

People & Blogs

Tags:

• Epilepsy
• tonic clonic
• seizure

[eddief32]

From the way he went into that seizure, it reminds me of my own, which are fired from the temporal lobe of the brain, I've been having seizures of that type for about 15 years now. Is he controlled on medication?

[kplowman]

@eddief32 hi eddie, he is much better these days he has only a few tonic clonics a week while sleeping and they are short fortunately ie. Less than one minute. I notice in your profile that you are hearing impaired .. Luke is also. He wears hearing aides and attends an early intervention kinder two days a week which is oral and signing. l

[val31178]

Just came across this video. Having a 3..almost 4 year old daughter with epilepsy my heart goes out to you. She was diagnosed with epilepsy in December of 2008. She was 2 years old then. Been on Keppra since then and no seizures since that December 08. Doctor thinks there is a good chance she has/will out grow them and will take her of meds when she goes 2 years no seizures. Hers where just like Luke's seeing this video brought back a lot of emotion. The helpless feeling as a parent during them.

[kplowman]

@val31178 Hope your daughter doing well. Luke is doing much better. He is now only having short tcs lasting <30secs and stopping by themselves when he is asleep. He gets them most nghts, but isn't currently getting any waking seizures at the moment thankfully.

[Nett1016]

Your Luke reminds me very much of my little man. Our Bug's seizures looked exactly like this before his Lamictal/Keppra/Zonegran therapy. Bug now has short duration T/C's almost nightly. Which is MUCH better than 3 minute T/C's 10 times a night. How is Luke doing now? He is absolutely adorable, so sorry he has to go through this and you as well. Does he often say he is cold before he has a seizure? All my best to you and your Luke!

[kplowman]

@Nett1016 Hope your child is doing better. Luke is much better these days . He isn't getting seizures whilst awake anymore (he was getting up to 60 a day at its peak) but is getting typically one short tc less than 30secs most nights, occasionally he will have more than one in a night. But certainly improved dramatically - but took a year to get it to this level of control. All the best to you guys as well.

[PersimmonOX]

Best wishes to all of you.

[crazyboafrog1986]

hugz n prayerz

luke hang in the buddy i have seizures too

[heatherwolf2704]

I have epilepsy , im sorry about your son.

[kylabotting]

i'm sorry to hear about Luke,but thanks for posting this...it is very informative. Do keep us posted about how he is getting on...wishing you all the best...

[kplowman]

Sorry to hear that you had a seizure and that you can't drive for another year. That is a real pain. Luke is doing ok, he has had 5seizure free days after an increase in his Frisium. Video EEG next week will hopefully get to the bottom of it.