A Year Ago Today - A Craniosynostosis Journey
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Uploaded by stickboyandgirl on Aug 6, 2009
This video is about our family's journey through our son's diagnosis of craniosynostosis and his cranial surgery. The song is "Everything" by Lifehouse.
Uploader Comments (stickboyandgirl)
Video Responses
All Comments (19)
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nice video
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very nice video.My one month old son is also diagnosed with craniosynostosis and needs surgery, but in Kosovo Prishtina we dont have such sofisticated endoscopic repair . Im looking for a way to operate him abroad.please help!
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@jimmycrawley1 im 19 & my 6 month old babygirl will be getting surgery in a few days, shes got coronal cranio, shes also getting her forehead reconstructed, i feel terrible i just want to get it over with. i hope ur son has recoverd & that ur family is doing wonderful.
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In all honesty, i must say first that i had bawled my eyes out the whole 6:12.When i first heard it i had to close it bc this song alone i cry like a baby to it.Now, that my son has a similar problem and may undergo surgery this meant even more to me.Everything about this video was awesome, things flowed into eachother along with the song,lyrics,beat, your own words.EVERYTHING was overwhelming. I would like to ask a few questions, if its okay. Private Msg me & i will give my email. God Bless--
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Just found out today that my 7 month old baby sister has this...she know has to have surgery :'(
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@stickboyandgirl That's good to hear. I live in Orlando, Fl and a surgeoun named Dr. Ruiz will be doing his surgery at Arnold Palmer. Not sure where you live, or if your familiar with the area.
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We lived in Dallas at the time and the Surgery was done by Genecove. Not familiar with the Orlando area.
stickboyandgirl 1 year ago
i'm crying! i'm a 17 year old mom to an almost 3 month old. tomorrow is his first apt to find out if he needs surgery or when he will have it. his sagittal and lambdoid sutures are closed. your son is beautiful! & i love this video.
jimmycrawley1 1 year ago
@jimmycrawley1 Hang in there, let us know how it goes!
stickboyandgirl 1 year ago
@jimmycrawley1 Jack is doing great. Who is doing your surgery?
stickboyandgirl 1 year ago