Possible PNES seizure or Grand Mal you tell me? PART 1

A few doctors say my Hubby has different types of seizures not just once type. If you seen his past videos most of those where chronic Grand Mal with one while he was sleeping being possible PNES this seizure that lasted about 15 minutes beginning to end (although I only got video of parts) happened right after he found out some really bad news and was having a stressful day. He was just sitting on the couch listening to music trying to calm and this is what happened.

Category:

People & Blogs

Tags:

• seizures
• grand mal
• pnes
• severe

[MegTheGreat82]

I have PNES it sucks balls!

I'm balling my eyes out watching this!, it's not fucking fair to have this shit!!!

My heart goes out to ya man!!!

Your wife is an angel!!!!!

[kittymccaffery]

@MegTheGreat82 Saturday night we had to call 911 he had a 45 min seizure. I was terrified. He's good now though.

[kittymccaffery]

Hey everyone check out my new website allgodschildrenonline . com it's got loads of info and more to come about my experience with epileptic and non epileptic seizures, SSD, doctors, and more. Furthermore it's a support group also to talk about what you have learned and your experiences. Hope we can all help each other. God bless!

[kittymccaffery]

My Hubby got his disability approval in the mail.Took him 2 yrs with a lawyer helping. He was diagnosed with uncontrolled phenomena convulsive epilepsy and chronic anxiety disorder. They are saying that after combining facts from all 8 of his docs they do not think his are PNES but an unusual type of epilepsy. All his seizures can be different sometimes looking like basic types of seizures but are not and they are typically caused by stress, fatigue, hunger, heat and diet. Feel free to ask Qs.

[kittymccaffery]

If you know anyone who is suffering from PNES seizures like my husband have them contact this email address koutsouliscasting@gmail.com and give them your name, email, phone number,age, current city and state and tell them your story you could possibly make it on the new A & E yv show like my husband but please HURRY they only need 2 more spots for the next 16 episodes! TNX!

[kittymccaffery]

Chad (the man in the video) will be going on a television show for A & E called the Incurables. They haven't given us an air date yet we don't even start filming until next month but the show will have his videos..and he and I will talk about his seizures, what all he goes through before after and during the seizures and how it effects his daily life. Best part is they are bringing in a specialist from England who will work with him to try to stop all these awful seizures and get his life back

[sworda1]

@gregorkrause I agree defiantly not fake I have epilepsy also and very similar it almost scary. It took a brave eye for me to look at this but I showed it to my friend who has scraped me off the floor a few times and he said that’s it a little different but that almost what my seiz looks like. It’s not PNES. And even if there was a remote chance there was I bet it would be the trauma it causes to ones life. CW

[nina555rio]

My heart goes out to you and your husband. I, too, suffered Grand Mal seizures from sheer stress and anxiety. They take parts of you away, they are scary, and you feel terrible right before it happens, and when you come to - its like coming out of the twilight zone. Your family is in my prayers.

[Lesbiaan69]

@MegTheGreat82 -Its have PNES as well it does suck-A lot of people think they are fake or I want attention but that's not what its about. We CAN'T stop this.

[Mspendragon72]

@kittymccaffery ..OmG...I have them too...so I hear you.

[MegTheGreat82]

@kittymccaffery You are one of a kind to stand by him, an angel!. I couldn't imagine it if I was watching my partner have the fits. I just hate the feeling after when I come too on the floor and he's got that worried as hell look on his face, I feel so guilty for having put people around me through it. Very hard to watch these videos, I don't know if I wanna see myself taking a fit anymore aye.

[tat6368]

Please check out if there is ELECTRIC SMOG somewhere in your house! My PNES seem to be justified by that phenomenon!!!