My Story

My 2yr old grandson and his journey through life so far.Diagnosed with DMD on April 20th 2007.. plzz check out my web page. http://xBABY-SHAUNx.bebo.com

Category:

People & Blogs

Tags:

• Duchenne
• Muscular
• Dystrophy

[diunca]

@languagenut5 developmental muscular dystrophy, it means that it develops shortly after birth

[Alienchick1]

Way to go on this video, it educates people on the devistating condition that DMD is, I to have a rare condition and luckily I am here 30 years on though mine is still being learned about and I am the oldest so we do not know how much longer I have to live, I thank you for sharing your sons story and taking each day as it comes and living it to the fullest is the best thing we can do...Shaun, you are a real cutey!

[cellomaster2]

cute kid

[ManiacalMoni]

Hehe, I have this or something very similar. I'm 12 and in a wheelchair, yes. But Shaun babe I'm praying for ya, but I'm doing perfectly fine so you will too! Lotsa love xx :)

[killamee]

so sad such a cute boy

[ishmamma]

i lost my brother who was suffering from dmd.. i have a 9 months old son who is developing normally, but i am soo scared ..... i dont want to loose him..... :((

i pray for u little babba, god bless u....

[languagenut5]

What exactly is DMD?

[AnnetteRush]

Aww what a cutie!! I am so pleased to see the Duchenne community is pulling together to spread the word. My son Joe is nearly 6 and has DMD, he has more energy thean I do thats for sure, he runs everywhere and lets nothing stop him - we found out in May last year, still sit here in absolute disbelief, but I have faith that science is going to turn it all around and soon!

[tkgarrot39]

You keep fighting Shaun and Family!!!! I lost my boy at 4 1/2 years old. If I could just have one more hug!!! Keep fighting and love every moment of life.

[qwerty123a]

hi

i happen to read ur comments regarding DMD.i am amazed by ur willpower to be so happy regaring ur condition of ur kids. i m praying for ur happiness n for ur sons!!!