Lupus 5-28-10 Antiphospholipid Syndrome

APS is a blood disorder and affects your blood coagulation. Be aware of symptoms that could possibly be a stroke or DVT.

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[musteyhey]

I JUST HOPE I DONT HAVE A HEART ATTACK CAUSE I CANT TAKE ANY OF THE MEDS THEY WANT 2 GIVE ME 4 MY HIGH TRY EVERYONE REACTS DIFFRENT 2 THIS APS IS WHAT IVE LEARNED I HAVE A GREAT TEAM OF DOCS

[treappling1]

@musteyhey I'm sorry that you have been through so much because of the APS. It sounds like lupus in the way that it affects everyone differently. I didn't know I had i when I was pregnant 23 years ago. I was on bed rest from 5 months on. Got severe preeclampsia. I lost 60 lbs of water in 3 days after he was born. Then wham it was back overnight. Horrible. The water was squeezing all of my muscles and I couldn't move. When I was in labor they thought I was going to stroke out.

[treappling1]

@musteyhey just do what your doctors say and everything will work out for the best. Keep the faith.

[cyn37211]

I was just diagnosed with APS last month. In the past I've had miscarriages, mini-strokes, paralysis (my neurologist just said I must've slept on my arm wrong), blindness in my left eye that never cleared completely, a swollen leg the ER nurse said was just from the heat...I could go on & on. I also have fibro, but I guess my APS is primary. My new dr tool me off ms-contin & put me on dilaudid, then roxicodone. He won't give me morphine, said its not the right treatment. I don't understand, are

[treappling1]

@cyn37211 I didn't get all of your message that ended with your question. It cut off somehow. Please rewrite me. :)

[MrsChibi1977]

I was diagnosed a year ago with APS. I also had 2 miscarriages before finding out...possibly 3. My hemotologist put me on 325mg. of aspirin everyday, and I'm hoping that's enough. I don't believe I've ever had a clot, and I'm hoping I never develop one! Any advice about treatment, other than aspirin?

[treappling1]

@MrsChibi1977 I'm so sorry it has taken me so long to write back. Please accept my apology. My doctor had me on baby aspirin and that was it. If I began to have clots, strokes, etc. she said they would put me on Coumadin. I am so thankful it never came to that. After the stem cell transplant I know longer have APS! So I no longer take the baby aspirin.

[musteyhey]

I HAVE THIS I AM 43 HAD A STROKE AT 38 I HAD 2 CHILDREN PREMATURE LABOR WITH BOTH BED REST FOR AT LEAST 3 MONTHS MY FIRST WAS BORN WITH A MAJOR BRAIN DEFECT AND DIED AT 5 YEARS OLD MY SECOND IS FINE HES 14 THEY BUT ME ON BLODD THINNERS AS SOON AS THEY REALIZED WHAT I HAD CAUSE I WAS SLURRING AND AND LIGHT HEADED SO THATS WHY THEY STARTED TESTING MY BLOOD AND THEN FOUND APS I HAVE SEIZURES ON OCCASION AND I ALSO HAVE VERY HIGH TRYGLCERIDES WHICH THE HEMO DOC SAYS IS BECAUSE OF MY APS

[treappling1]

@lovestimhawkins You have really had a time with this. Mine has been kept under good control with baby aspirin. Thank you for all your kind words. You definitely will be in my prayers.  Take care and please keep watching. If you have any questions please ask or if you have something to teach that would be wonderful too.

[lovestimhawkins]

I have lupus anticoagulant. It started with a blood clot in my leg. Was in hospital 8 days. Lovenox shots im my tummy and coumadin. I left hospital with a coumadin, but i got more clots so now I have to take lovenox shots in my tummy and a autoimmune drug cyclosporine, I have had to have 2 pints of blood when my blood was too thin. I have been in and out hospitals many times.

Your video is very good. You speak from experience. My prayers are with you. Lord bless thee.