When will ME be treated as the physical illness it is ?

A plea to Me Blair to fund physical research into Myalgic Encephalomyelitis (ME).

Category:

News & Politics

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• Got
• Question
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• Tony
• Blair
• ME
• CFS
• Advocacy

[sarahdelightful]

Hi there. I totally agree with you with saying that there is a lack of understanding and support for conditions like ME/CFS....I also am annoyed why doctors think that behavioural therapy will work on ME patients - ME/CFS is not caused because of negative thoughts so god knows why the NHS has got this as a compulsory treatment for CFS patients.....

[CreekFeet]

Perhaps that commenter misunderstood the point: this sufferer doesn't want to end her life, she wants to end the suffering. This couple is advocating for appropriate research and treatment, living through a horrible disease, living for a noble purpose.

[quick741]

She shouldn't have had to go through this for this length of time, she should have the right to end her life if she chooses, I know it isn't right, but is it right for someone to suffer like this for this long??? You decide.....

[835283]

I had a roommate with the disease M.E and he was forced to take heavy anti-psychotic drugs everyday which made him worse and they kept forcing him to take it. I was in a mental hospital with him in 2009 and they forced the same drugs on me also which made me throw up for 3 months which in the end gave me M.E destroyed my immune system. I haven't heard from my friend since 2009 when was was forced to take drugs as he was sectioned for having M.E, horrendous what I witnessed him go through, MY GOD

[835283]

I had a friend who was my roommate in the mental hospital I was in. I got ME from a medication they gave me that made me throw up for 3 months in there and said I had to take it. Anyway about my friend he had M.E and was sectioned and they gave him drugs without his consent and he had no choice but to take them. He got so much worse from the anti-psychotic drugs they were forcing onto him, I will never forget him and what the psychiatrists did to him, that memory is with me for life!

[sedod66]

i thought i had M.E for a week. turns out i just couldn't be fucked going to work.

[neil1758]

i was told by my doctor that there is no test for M.E, this is why its a mystery illness, doctors really need to do some more research into this. there is no real physical evidence that this it is neurological, my theory is it is a immune system problem.

[synapse131]

Certainly, Lyme represents one of the subsets of CFS but there is too, too much evidence that other viruses and bacteria and bacterial-like pathogens can cause these illnesses. In addition, there are small numbers of folks with organophosphate poisoning, ciguatera, etc. that are also being included under the rubric of "CFS." The major thing is that we have had a wave of pathogens move and spread across the world causing these illnesses and they have been ignored.

[Unsweet]

This fucking breaks my heart. Bless her, the poor thing. I JUST found out about this whole CFS-is-bull thing... I feel SO strongly sympathetic towards sufferers of this horrible condition.

[antares4141]

Mold and CFS symptoms are directly related to each other. You can prove this to yourself by going to walmart buying a $37 dome shaped 9x7 tent,(no stakes needed, nylon very low on VOC'S) setting it up in your bedroom and putting a medium to large size hepa filter in it. Don't come out without a respirator designed for asbestos and mold abatement EVER,For about a week anyways. I know I am not the only one with this condition. PLEASE TRY IT AND CONFIRM IT FOR YOURSELF WHAT YOU ARE UP AGAINST!