My son Jayden whom is 2 years of age has vcfs such as I do (his mother) also has vcfs! I'm NIcole and I am 25 years of age. My mother found out I had VCFS when I was 3 years of age! We were are so scared, but no matter what happend in life we are all special in our own way! I've had some depressing moments in life with bullies, feelings, and ect.... Once I found out I was pregnant and knew it was 50/50 chance he could have vcfs I was terrified, but no matter what I'll always love my son! <3
My son Joshua has Di george and when he was first diagnosed there was only two sites on the internet about the syndrome. I swore I'd do something and I did. The local paper came and did a story and before I knew it Joshua's story was on the internet...and in turn it helped raise awareness. I am sooo happy to see this video. It is truly amazing and now when people ask me I can refer them to this video...great job!!!
I'm 25 and have vcfs all my life! My son whom is almost 2 also has vcfs, but as for now he's completely normal! i'm so blessed to have a wonderful child like him! :)
My son just got suspended 2nd time in grade four....he was consistently picked on in 2 different schools (his cupped ears and open mouth) and he (althought quiet) retaliates by hitting. My wife and I endure(d) a lot of his health and care...and now the nightmare continues.
My Son Has This Syndrome And I See In This Video All The Kids Ears Are A Lil Bent My Sons Are To But It Dont MAke SOmeone Differnt Just Cause They Dont HAve The NUmber 22
My son Jayden whom is 2 years of age has vcfs such as I do (his mother) also has vcfs! I'm NIcole and I am 25 years of age. My mother found out I had VCFS when I was 3 years of age! We were are so scared, but no matter what happend in life we are all special in our own way! I've had some depressing moments in life with bullies, feelings, and ect.... Once I found out I was pregnant and knew it was 50/50 chance he could have vcfs I was terrified, but no matter what I'll always love my son! <3
LifeAsNicole 1 month ago
My son Joshua has Di george and when he was first diagnosed there was only two sites on the internet about the syndrome. I swore I'd do something and I did. The local paper came and did a story and before I knew it Joshua's story was on the internet...and in turn it helped raise awareness. I am sooo happy to see this video. It is truly amazing and now when people ask me I can refer them to this video...great job!!!
nicholebyers1 5 months ago
I'm 25 and have vcfs all my life! My son whom is almost 2 also has vcfs, but as for now he's completely normal! i'm so blessed to have a wonderful child like him! :)
LifeAsNicole 8 months ago
Amazing!
LifeAsNicole 8 months ago
Amaizing video!
I posted it on my facebook page,
I have the 22 chromosome as well.
Kerenl123 10 months ago
My son just got suspended 2nd time in grade four....he was consistently picked on in 2 different schools (his cupped ears and open mouth) and he (althought quiet) retaliates by hitting. My wife and I endure(d) a lot of his health and care...and now the nightmare continues.
vincevega0 1 year ago
@mrskiedis123 we have since found out my husband and 5yr old have it too
mrskiedis123 1 year ago
@mrskiedis123 we have since found out my husband and 5yr old have it too
mrskiedis123 1 year ago
My Son Has This Syndrome And I See In This Video All The Kids Ears Are A Lil Bent My Sons Are To But It Dont MAke SOmeone Differnt Just Cause They Dont HAve The NUmber 22
samspade19 1 year ago
Do you have an email address or a fb page??
Heather082574 2 years ago