Ankylosing Spondylitis
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@robjlt Ok thanks for the info. I do get blood taken every 6 months i assume they are checking for iron and other things. I also have bad short term memory but might be from years of the sweet leaf :) So far the Humira is working pretty well for me, but I can definitly tell that Im not able to do things as easy as i could 10 years ago. Still skateboarding alot people think im crazy but whatever even most of the people i know that used to skate say that they are too old now i just laugh :)
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@kopingkiller Actually AS can affect you in other ways. I found out from the VA hospital that I am anemic because of low iron and it's very possible that it was caused because of the inflammation. It's a good idea to check your iron levels and for me I had a very bad problem with my short term memory, mental focus along with other problems and when I increased my iron, along with taking supplements, (Omega 3's, Vitamin D). Look into HA Hyaluranic Acid, good for joints also anti-inflammatory.
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Ok, I understand why some of you are frustrated, I have AS as well. But can we give some help to her, she's at least trying to help her boyfriend with a disease that many of us are familiar with. As far as taking medication, I do not take any, however if it works for you and you haven't had problems with the side affects I'm glad. There are some affordable things you can take such as dietary supplements. I take HA (Hyaluronic Acid) (good for joints) as well as Omega 3, Vitamin D.
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Oh my god I'm going to be brain dead someday!
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@ryotaryuu Indeed!
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hello for everybody !! I have AS , I have been medicated with remicade with great advances , now I am with autohemoterapy with also great advances ! I am looking for people to chat with , in english , to learn the languaje , also for coment experiences about our AS , good luck for everybody in your lifes , I will be waiting for your mesage , bye, bye !!!!
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Get good health insurance and get on Humira or Embral. Works very well for me. Also this is a bone and joint disease and does not effect your brain. I am 36 years old and have AS. I also have been a skateboarder since 1985. Take my advice get on good meds that work and stay active in some sport. The meds are very expensive so get a job that offers good health insurance this is very important! Don't give in to this disease you have 2 choices to give up or fight!
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Hey hey hey, slow down. you have the rest of your life with him if you choose to. He will NOT become brain dead unless you convince him that is how he will be, this AS thing does not effect your brain. It can make him paralyzed if it gets bad. My advise for you would be to support him and encourage him to do anything and everything to keep himself moving and active. Watch as many of these AS videos on here as he can, they are great and have alot of usefull info for him. good luck!
Brain dead? I have had AS for years why did know one tell me? oh yeah because its bull.
ianjohnson614 10 months ago 3
I have AS, and i'm not brain dead. Who in the hell told you that bullshit?
ryotaryuu 9 months ago 2