9 on Your Kids Side ~ Sydney

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Uploaded by on Jan 21, 2007

Child with a terrible form of epilepsy (seizures) and developmental delays called Dravet syndrome,(SMEI)gets an amazing gift from ABC news.

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Uploader Comments (HopeForSydney)

  • Learn more about Sydney and Dravet syndrome at HopeForSydney(dot)com

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All Comments (6)

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  • My son has recently been diagnosed with Dravet and the expenses that comes along with any epilepsy are astronomical. Petrol, Drs Bills, Protective Gear, Medications the list is endless. Thank you to those companies who have helped this family out.

    I wish all those who have Dravet Children the best of luck for their futures. Unfortunetly its not just the child who has it, the whole family has epilepsy because the child does.

    Good Luck and God Bless x

  • Saw this at the Dravet conference in Chicago this past year. Making me cry all over again.

    God Bless!

  • My daughter also has dravets syndrome and I know your pain I pray for everyone who has a child like ours in hopes for one day finding a cure!!

  • It's tragic that they have to pay so much to keep her epilpesy under control

  • Wow. That is tragic. I have epilepsy myself JME to be precise. But this makes mine seem mild and not a problem.

  • Amazing story...Thanks for sharing

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