When I Found Out I Was Going Blind

I finally went to the Eye Doctor only to be sent straight to the ER. Turns out my ransom vision spells are not in my head, they are caused byy papilidema (pressure in my brain that is damaging my optic nerves). Turns out I have Pseudotumor Cerebri and if it doesn't get fixed soon I will go blind. This vlog contains the raw emotions I went through shortly after the news.

Update:
After going through 4 brain surgeries I finally am able to live without headaches. The majority of my vision is intact, although I have a small blind spot in each eye which will most likely be permanent.

Category:

People & Blogs

Tags:

• Brittydragon
• pseudotumor cerebri
• papildema
• going
• blind

[velikival]

Hy,

I m 25 year old male diagnosed with IIH,I come from Croatio a country near Italy,all that I can say its not the desise that kills your mind its the fear off loosing your vission,the worst thing is that you cant do anything about it.I feel angry all the time,helpless,of going through life with shit of diagnoses.All that I can say to you and to my self at this time is HOLD ON.

[Brittydragon]

@velikival Keep on fighting. For me since my vision is stable now the worst part is the pain that leaves me exhausted and unable to think clearly.

[RobbieSaysRawr]

omg, my heart goes out to you, i just wanna give you a hug, keep going and never give up

[Brittydragon]

@RobbieSaysRawr Thank you so much. This was a hard time for me. I still feel the pain a lot. The physical pain and the emotional. However the sadness has been much easier to deal with since I started vlogging. It is very thereputic.

[RobbieSaysRawr]

@Brittydragon i hope that you continue bringing out video's about your progress. And i watched your video about your hell in the ER and i thought that it was just disgraceful, are your visits always like that ? because if they are then they should really get a move on.

[Brittydragon]

@RobbieSaysRawr I accidently responded to your last comment on my 2nd channel. Sorry I have 2 youtube channels and that happens sometimes. Thought I would give you an update. Not only has my doctor ordered a ton of tests, including a shunt function study that will show if my shunt is working and test for infection, he is also totally on board with treating me with a drug that is still experimental for my disease and has been called by many patients the "miracle drug" for IH. I have hope again.

[RobbieSaysRawr]

@Brittydragon I'm glad to hear that and i hope that drug does great things for you. I will be watching you future videos to see how your doing. All of my wish's are being aimed at you

[fourlonglostfriends]

@RobbieSaysRawr I don't usually go to the ER. However I have had times I was in the hospital and they refused to tap my shunt only to find out a month later that I really did have an infection raging in my brain. They like to wait till I have a fever, which I just don't experience when I am sick. The first infection took 3 months to develop a fever and my last infection took 5 to develop a fever. So I seriously don't want to wait that long. Plus my vision is clouding over now and that is bad.

[Brittydragon]

@MissJessLC Thanks. I hope that when enough of us speak up people will finally begin to understand

[MissJessLC]

I love your videos and my heart really goes out to you. I have this same condition and was diagnosed when I was pregnant. I hope you get better soon!!! xx I also made a video :)