You're the second person I've found... and like the first, haven't updated in years. If you read this, I'd love to talk. I'm trying to find a rheumatologist because my doctor thinks I have Lupus, and a support group on YouTube is just what I need!
Thanks for sharing your story. I have Systemic Lupus and was diagnosed in 2003. Your video is very informational and helpful because I don't know much about the Discoid kind. You're beautiful. I'm going to subscribe. :)
I have sle for about 4 years i am at the point i am nauseated 24/7 if i eat i throw up , i have sores all over what is happeneing drs never seem to have the right answwr
Hi, I have been a Discoid Lupus sufferer for 25 years. When I first contacted the illness it was diagnosed as Jessnas disease. They put me on anti-malarial drugs for year and as they where having no affect whatsoever I gave them up and stopped seeing the dermatologist. To cut a long story short I changed Gp's and the new doctor sent me back to the consultant who diagnosed Discoid Lupus, the only thing that gives me relief is Prednisolone, which does nasty things to you but it does help.
Hey, my name is Tish, and I thought I posted, but it didn't show up, new to this, so if you get it 2 times, sorry. I have had Discoid Lupus, for 10yrs, lost over a third of my hair permanantly,and have some facial scarring, I was diagnosed with SLE last year, so now learning new limits on life, but found a really good online support group at Daily Strength.or, Hope you join us! Tish
You're the second person I've found... and like the first, haven't updated in years. If you read this, I'd love to talk. I'm trying to find a rheumatologist because my doctor thinks I have Lupus, and a support group on YouTube is just what I need!
elizawhat 1 year ago
hey vampire girl, look for the stem cell procedure, seems to be doing great things for people with inmunological problems
dejstil1974 2 years ago
Thanks for sharing your story. I have Systemic Lupus and was diagnosed in 2003. Your video is very informational and helpful because I don't know much about the Discoid kind. You're beautiful. I'm going to subscribe. :)
I also have a Lupus channel...
theleepchatchannel 3 years ago
I would probably bang that.
HentaiNoKamiSama92 3 years ago
I have sle for about 4 years i am at the point i am nauseated 24/7 if i eat i throw up , i have sores all over what is happeneing drs never seem to have the right answwr
roxy112671 3 years ago
Hi, I have been a Discoid Lupus sufferer for 25 years. When I first contacted the illness it was diagnosed as Jessnas disease. They put me on anti-malarial drugs for year and as they where having no affect whatsoever I gave them up and stopped seeing the dermatologist. To cut a long story short I changed Gp's and the new doctor sent me back to the consultant who diagnosed Discoid Lupus, the only thing that gives me relief is Prednisolone, which does nasty things to you but it does help.
silverfox173 3 years ago
Thank you for your video. I am a discoid lupus sufferer in denial.
trees186 3 years ago
I'm a dude and i have Lupus, it gave me brain damage, it sucks!!!!!, hey you're kinda cute Vampiregirl!!, let's go out!!!!!, see ya!!! Iván
ivanamezola 4 years ago
I was diagnosed this year.
asiura123 4 years ago
Hey, my name is Tish, and I thought I posted, but it didn't show up, new to this, so if you get it 2 times, sorry. I have had Discoid Lupus, for 10yrs, lost over a third of my hair permanantly,and have some facial scarring, I was diagnosed with SLE last year, so now learning new limits on life, but found a really good online support group at Daily Strength.or, Hope you join us! Tish
ladycarter4ever 4 years ago