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Lupus support

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Uploaded by on Apr 16, 2007

Lupus support

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People & Blogs

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Standard YouTube License

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  • You're the second person I've found... and like the first, haven't updated in years. If you read this, I'd love to talk. I'm trying to find a rheumatologist because my doctor thinks I have Lupus, and a support group on YouTube is just what I need!

  • hey vampire girl, look for the stem cell procedure, seems to be doing great things for people with inmunological problems

  • Thanks for sharing your story. I have Systemic Lupus and was diagnosed in 2003. Your video is very informational and helpful because I don't know much about the Discoid kind. You're beautiful. I'm going to subscribe. :)

    I also have a Lupus channel...

  • I would probably bang that.

  • I have sle for about 4 years i am at the point i am nauseated 24/7 if i eat i throw up , i have sores all over what is happeneing drs never seem to have the right answwr

  • Hi, I have been a Discoid Lupus sufferer for 25 years. When I first contacted the illness it was diagnosed as Jessnas disease. They put me on anti-malarial drugs for year and as they where having no affect whatsoever I gave them up and stopped seeing the dermatologist. To cut a long story short I changed Gp's and the new doctor sent me back to the consultant who diagnosed Discoid Lupus, the only thing that gives me relief is Prednisolone, which does nasty things to you but it does help.

  • Thank you for your video. I am a discoid lupus sufferer in denial.

  • I'm a dude and i have Lupus, it gave me brain damage, it sucks!!!!!, hey you're kinda cute Vampiregirl!!, let's go out!!!!!, see ya!!! Iván

  • I was diagnosed this year.

  • Hey, my name is Tish, and I thought I posted, but it didn't show up, new to this, so if you get it 2 times, sorry. I have had Discoid Lupus, for 10yrs, lost over a third of my hair permanantly,and have some facial scarring, I was diagnosed with SLE last year, so now learning new limits on life, but found a really good online support group at Daily Strength.or, Hope you join us! Tish

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