Daniel2008 on floor - Severe Cerebral Palsy teenager

Movements Daniel can do on the floor. This video explains why a incapacitated nonverbal severely spastic quadriplegia CP disabled child needed Assistive Technology (AT equipment) for self-mobility and self-help daily living tasks. http://www.youtube.com/DwebVideo show his intellectual skills rather IQ driving a power standing wheelchair at 16.
With the appropriate equipment, it can meet his medical, communication, physiological, and psychological needs.
Proper fitting of AT enabled Daniel to walk: http://www.youtube.com/user/walkingdan#p/u/12/31re6iBFKYI
to drive a standing power wheelchair:
http://www.youtube.com/user/DWebVideo#p/a/u/0/WgcLO-PyJ1M
At 17, Daniel undergo a successful & economical Spinal Fusion Surgery to correct his scoliosis.
http://www.youtube.com/watch?v=uX899XfEdoY
At around age 12 when Daniel on the floor: http://www.youtube.com/watch?v=wdPO5zRYPBU
At around age 9 when Daniel on the floor: http://www.youtube.com/watch?v=n3RVfcv9_Gk
The assistive technology acts as a communication device that allows Daniel to socially interact with others. The videos listed above shown where Daniel walks in his own Rifton gait trainer for cardiovascular exercise, stands in the Easy Stand 5000 for bone health and other benefits. As well as, he drives a Permobil power standing wheelchair that was loaned to him just to document his un-measurable cognitive abilities. You would never ever imagine he can do all that based on what you see in this video. :)
Lock of weight bearing resulted in bone fractures in 2006 & 2008.
The biggest battle of his life is not his disabilities, it is his public school, a place where he suppose to learn new life skills to prepare him to became an adult. Instead, they humuliated him in the school's walker, taught him to be even more dependent on other adults and limited his access to other non-disabled peers while he walks at school, given him no role models, no encouragements, no competitions, and no rewards. He has to walk alone everyday with the ill fitted walker, having no purpose and no walking buddy.

His public school administrators once questioned Daniel's private physical therapist "Do you think Daniel can ever walk?" His private PT said "l learned from my past experience, NEVER SAY NEVER".




Nevertheless, just from his daily standing and walking at home, he developed muscle mess around his calfs and thights that make his legs looks normal and functional.

Daniel developmental milestone:

Age 1 video: Baby Daniel on the Mat showing his floor mobility http://www.youtube.com/watch?v=Yxj6UQA6bdI

By age 3, after only few years private conductive education, Daniel had overcome so much since birth, including self-control to reduce infantile spasms, improve head control, improve swallowing to drink thin liquid, self-stablizing his trunk with use of his hands, and so much more.
By age 9, he took his "1st independent step, in his own gait trainer adapted by his parents."
By age 14, Daniel parents start to train him to drive a power wheelchair.
By age 16, Daniel mastered the skill to drive independently with the power wheelchair and know his way around the mall to find an elevator.
At age 17, While he has a much higher intellectual skills than his high school evaluated with, he lost the ability to initiate his own step, and unable to go anywhere in the school building. His public high school forced him to walk in a unfitted walker with his heel partially came off his shoe with his ankle twisted and denied his mom to look through the office window to check-up on Daniel's walking progress

In 12th grade, Daniel had to be home schooled for his safety. Since then, he now able to walk at home on his own for a short distance. He is now slowly being re-train to perform sit-stand pivot transfer. It took over 3 years to lost that skill, it may take that long for him to regain it back.

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• walkingdan1

[LissCanDoMakeup]

i love him already:]

[walkingdan]

@LissCanDoMakeup Thank you!

[romanido]

Amazing!!! so cute and so corageous!! never give up your love to daniel , my love is for you both

I´ve seen all the videos of Daniel , he is incredible

[katchkittie]

Thank you so much walkingdan,you have opened my eyes to my own personal disability xx

[mmwwh]

well done daniel :)

[Morten1502]

His acticuly realy smart to have a brain fail

[walkingdan]

@WayoftheMemra I hope someday, his insurance will fund HBOT in our state, so that Daniel can try it before his brain is fully developed by age 21. I am always researching for program that can help Daniel to be more nonindependent.

[walkingdan]

@WayoftheMemra Seeing is different than hand-on to feel the tightness of Daniel’s joints; shoulders/elbows/wrists/finger­­s, hips/knees/ankles/toes, necks, & trunk strength. Then you will know crawling for D is a miracle! Conductive Ed offered more realistic daily basic functional life skills than patterning and CE already trained Daniel’s brain to walk in his gait trainer. Daniel had yrs of CE, and Daniel being an adult; crawling & creeping is inappropriate mobility at this stage of his life.

[walkingdan]

@WayoftheMemra I do understand IAHP program, watched the TV special years ago & also known a down syndrome teenage locally gone to the program w success; but they were born w much higher potential/functioning skills than Daniel. He has no hands coordination to pick up any objects to point /write/feed himself. Daniel will drop his head hard on the table, if he is unwilling, that is an unsafe floor mobility for him. kids like D had many surgeries and deformities that can threaten their lives.

[walkingdan]

@WayoftheMemra Until you have seen Daniel’s MRI, you would never known his lack of brain development that set his limitation. Till then you would not truly appreciated current his functioning skills. He had already shown his remarkable skill by driving a power standing wheelchair, walking in his gait trainer, and other functioning skill that I cannot show on YT. Daniel should be in the Guinness world records for his accomplishments. However, if IAHP is free, I would love Daniel try it!

[walkingdan]

@WayoftheMemra Daniel also worth everything to us for him to be independent and we must be realistic with our hopes given his condition. We had already invested our resources in conductive education for years, special light/pressure points/water therapy, outdoor recreation, and computer to enrich his life; and that is why he had already reached much of his potential. In 80’s, I developed computer software on a touch screen for him to make choice for communication, but he wasnt motivated.

[walkingdan]

@WayoftheMemra You claimed your son has “Hemi”.  I am not sure if that is “hemiplegia” or “hemiparesis”, regardless, it is just one side of his body has total/partial paralysis or just weakness. Wikipedia stated, "Not to be confused with Spasticity, Spastic quadriplegia or Quadriplegia". My son has much worse condition than your son, Daniel will never be like you son!!! Nor can we expect an apple from an orange. Your comments might help others. Hope you can watch my son’s other videos.