Nate's Room and Equipment.AVI
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@rer3family Is the oxigen need more serious then a ventilator or is ventilator I am wondering which is more serious. I have heard of ventilation for all types SMA1, ALS, SCI quads, to name a few illnesses and accidents a nuro disabled with kidney person can end on dialysis, vent, and feedind tube situation. just trying to figure it out. How has Owen been doing since his brother Nate passed away? I hope Owen is doing well.
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I recognize very much of Nathan's equipment. I also have SMA, but type 2. I live in Sweden and I'm not very good at english.
I'm thinking of you. Hugs //Emma
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how many diaper changes does he have in a day?
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what are those things on his arms and legs?
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3:21
Nate in his Portable Liftby rer3family10,966 views- 3:21
Nate Ceiling Lift to Poolby rer3family14,220 views
- 2:01
Mary Kate thrives at homeby PediatricHomeService1,097 views
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Nate Off Bi-Papby rer3family4,099 views
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Mayci Jan 8 2009by kristihogg21,866 views
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Alana's Storyby glendaf39236,160 views
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Nate & The Cough Assistby rer3family16,183 views
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Zoe at the talent show finalsby lmgrisez33,132 views
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Owen Helping Nate Play the Pianoby rer3family1,308 views
- 3:47
LEXA Patient Liftby bigwindow1241,653 views
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Spinal Muscular Atrophy-Shira Fisher A-Channel News June 06by Shira22,657 views
Ventilation is more important because they don't have the muscle strength to get the deep breaths they need, which then affects the oxygenation. Oxygen is very important obviously but if they get the ventilation they need they usually don't need the oxygen unless they are sick. Some kids get proper ventilation thorugh bi-pap (assisted ventilation) non-invasively, but others who are weaker need a trach and pure vent which is done by surgery. Every child is different.
rer3family 1 year ago
Ventilation is more important for sma
rer3family 1 year ago
what do the slings do
MaddieTights13 2 years ago
They are used for exercise. He can move his legs pretty well when they are lifted and you take gravity away. The slings support his legs and arms so he can kick and move. We put on music and he "dances". He loves it!
rer3family 2 years ago
@rer3family If you dont mind me asking. What is it Nate has please.
Megatronmrs 2 years ago
Spinal Muscular Atrophy Type 1.
rer3family 2 years ago