Microvascular Decompression (MVD)

Surgical treatment for classic Trigeminal Neuralgia.

Category:

People & Blogs

Tags:

• trigeminal
• neuralgia
• face
• pain
• surgery
• mvd
• microvascular
• decompression
• electric
• shock

[NaturalBeauty0195]

I'm 16 and I have TN. It is the worst pain I have ever felt my whole life. TN is taking over my whole life. I have missed months of school, my social life is ruined, I cannot shower, eat certain things, drink certain things, etc. I have become depressed. I've been in and out of the hospital and have had so many drugs and medications given to me, I could write a book. My mother and I are looking into getting this surgery done soon, and I am praying it foes well.

[chanclamp]

@NaturalBeauty0195 - Hang in there - there are many great places to get help, Dr. White and his TN group at UT Southwestern are just one of many in the United States where you get this surgery. If you have classic TN, you have a good chance for success.

[roorcs]

It is so good to see I am not alone suffering this horrible disease. I have had it for 3 years, and my neurologist has defined it as "severe TN." I have been recommended urgent referral to a neurosurgeon. I hope my surgery comes soon.

I am 33 years old. I lost my job, and fighting depression. I'm cranked out on the medication and can barely think straight. Bless all of you who suffer this, I offer encouragement that you're not alone. May the Lord Jesus Christ bless you!

[ericamanda01]

Ive had TN since I was 14. I have had long periods of remission. Now at the age of 37 its gotten out of control. I am going in for the MVD surgery on Jan 4 and I can't wait. This is no way to live.

[MsNicole0913]

@NaturalBeauty0195 I also have TN I'm much older at 33. I have had it for 5 yrs and I am also going to have this surgery some time this year. Medication was helping me for the last 4 years, this year has been the worst. I know your pain, and frustration. You hang in there and keep the faith. Do not let this disorder beat you!!! If your looking for another location I work and my neurosurgeon is at Cleveland Clinic they are also very experienced in this surgery. Good Luck and God Bless you!!

[SpoiledKitty07]

@clampsno1fan I got it at 20. I'm now 22. I'm in USA so I'm one of the youngest known since it's a very uncommon thing to get especially so young. I was reccomended this surgery but chickened out.. :( I was on Lyrica for my pain and a TON of narcs like oxycontin, hydro/oxycodon, narcodon, ect but nothing helped. One day I woke up painfree. I've been in remission for about 6 mos now and off meds but b4 I was a heavy pill pusher to kill the pain. Idk what happened but I'm thankful.

[clt1074]

@YungKing5 but there are many more good ones too.I hope things work out for your mum and her pain is sorted.

[clt1074]

@YungKing5

Well if you want my advice if she is offered the surgery and the pain is bad tell her to llook into all the pros and cons and then make her own mind up but the surgery has a good success rate especially with trigeminal neuralgia around 85% success I believe.Find a surgeon who has performed a lot of the operations and when she sees him go with a list of questions including success rate and chances of it returning.Don't be put off by the bad stories all surgeries have bad stories.

[YungKing5]

@clt1074 damm bro kus ma moms got dis pain on her face n she been diagnosed wit dat trigeminal neuralgia sht been botherin her for a min is gettin kinda serious n im gettin worried