Nastyenkas story
(Anastasiya Olkhovskaya and Chronic Myelogenous Leukemia)
(Anastasiya - Russian girl name, dim. Nastya, Nastyenka, Nastyusha)
We have not had such a little child in our department before. Nastya is only 6 months young (as for April 2009), she cannot sit or speak yet. 3 of these 6 months she has spent in hospitals.
Nastyenka became ill after she got a vaccine at the age of 3 month. It is practically a detective story. Previously parents were told that it was a measles/rubella vaccine. After the vaccine the child got high temperature that never stabilized, and the scandal was a fact. There appeared a new note in girls medical journal stating that vaccine was against poliomyelitis. We will hardly ever know for sure what really happened.
During 3 months following the vaccination Nastya has continuously had fever, has lost appetite and has not slept well. Her abdomen grew bigger due to enlarged spleen and liver. The girl was examined by one specialist after another: Infectionist, gastroenterologist, oculist, and finally, haematologist. Doctors in Donetsk (Nastya comes from Volnovakha in the Donetsk Region) have never succeed in setting up a diagnosis. But a strong suspicion arose that she had leukaemia. She was sent to Okhmatdyt hospital in Kiev for further diagnosing. Here finally Nastya was diagnosed with chronic myelogenous monocytic leukaemia. And doctors conclusion the only therapy option allogenic bone marrow transplantation from alternative donor (not family).
Nastyas mother and father were overwhelmed by the news. The life of their little daughter can only be saved by an expensive surgery abroad. And the whole financial and psychological burden is placed on this young familys shoulders. Everything hopes for a happy childhood, family life in native town of Volnovakha, small joys and sorrows, first teeth, first steps, kindergarten, school that everything was in danger because of the horrible illness and not at least horrible sum of money which is required to make all dreams come true first words, steps, dresses, dolls, birthday parties. The cost of allogenic bone marrow transplantation varies between 150.000 USD in Belarus and Russia to 250.000 EUR in Germany.
Nastyas mother Marina is an accountant at a communal company Voda Donbassa, now at home with the child. Father is a driver. They have had to travel a lot between Kiev and Donetsk during last three months, and they keep ends meet only because of financial help from their parents, Nastyas grandparents. Of course, they do not know where to get so much money to pay for the surgery.
Thank God, we know that there is always a way out, and we can make this surgery possible. There were children who got their surgery even if it seemed in the beginning that there was no money to find and no help to get. The wish to help your next, to do something good it is inside us. Sometimes we do not allow it to come to the surface, do not hear it, forget about it. But one day the moment comes when you recognize: You can make the difference too! Somebodys life, somebodys happiness and hope depend on you too!
Our help is all Nastyas parents hope for. Nastya was sent home from Okhmatdyt Hospital where she takes her medication. We have one to six month to help her.
Nastyas and her parents blood samples were sent to St. Petersburg, Russia for testing. Results will come at the beginning of May.
Please, help Nastya! She cannot say thank you yet. But one day when she grows up she will surely do it!
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