Tips for dealing with POTS - Part 1

The title describes it! Here are some tips I've gathered over the years, as well as some of your favorites. I think it's so important that as patients of this condition, we share all of the beneficial things we've learned with one another. When I was first diagnosed with POTS, I was lost. It was terrifying to have a condition that no one seemed to know about. Thanks to the internet (I would literally be bedridden if not for its existence) I started the slow process of learning about it.

My hope is that even just one person benefits from these videos or learns something new that's helpful to them.

Sorry if my voice is kind of scratchy - my throat's been bothering me (allergies!) and I had done way too much talking by the time I managed to film the finished product! LOL. For whatever reason I was overwhelmed by how many tips there are & how much I wanted to say, but in the end I just kind of threw it all together realizing "it doesn't matter HOW I get it across, just that I do!!" :)

Category:

Education

Tags:

• pots
• dysautonomia
• chronic illness
• orthostatic intolerance
• low blood pressure

[lednugenna]

These are really great tips. Unfortunately I have noticed that the V8 and soup is lower in sodium than they used to be but still are helpful in keeping the salt up. I am off to video 2.

[chronicallykyli]

Isn't that frustrating? Most of the world wants to eat food that's lower in sodium, and here we are searching for salty foods while food companies are trying their hardest to take the salt out!! lol...

[lhopkins37]

Thanks for the tips!! I have had Pots for 6 years now!! It's nice to know I am not the only one and that I am not crazy or winey about how I feel!!!

[rx2mozart]

thanks!

[ironbith]

I have trouble giving up coffee!!!!!!

[2136cass]

Thanks for the videos! There lots of wonderful tips.

I guess I am a rebel, but I actually find drinking caffeine super beneficial. I have so little energy, the caffeine helps get me through the day and helps lessen my migraines. I actually get less tachycardia when I drink caffeine because the caffeine causes peripheral vasoconstriction, raising my blood pressure.

[luminescentfeeling]

Great video.

I never drink enough (swallowing problems) and as the hours tick by I get worse and worse.

I think also having extreme fatigue as well as orthostatic tachycardia means walking to the bathroom can be difficult - so POTS patients can accidently on purpose (e.g. from not wanting to get super dizzy/faint walking to the bathroom) dehydrate themselves.

But like you said, at the end of the day - we must drink somehow.

Coca Cola/Lucozade always give me resting tachycardia too.

[NicTiffany]

Reformer pilates is really great too!

[bionyx86]

WOOT! NICE LEGS! Oh wait... off topic... lol. Video came out Kyli! You'll cave eventually, we'll get hitched, i'll grow on you like a fungus... but not all green... except when sick... lol Btw, G2 the Low Cal/Low Sugar Alternative is good, i drink a lot of it to stay away from the ER, it does have glucose-fructose corn syrup which is a bit dulled so it's better there too :). Smart water is awesome and V8... further makes me fall for you... I mean i fall a lot but you know what i mean ;)