My battle against Multiple-Myeloma (Video 1)

What lead to the diagnosis.

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People & Blogs

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• Multiple-Myeloma

[lolzalways]

Hi, My father is diagnosed with multiple myeloma, he has gone through 5 cycles of chemo... and presently no sign of any bad cells ... doctor is suggesting us to go for stem cell transplantation... please suggest if we should go or not. he is 57 years old and has diabetes.... please suggest

[guy2010027]

Hi "lolzalways", It is not up to me to tell you what you should do. I'm no doctor. That decision is between you and the doc. Stemcell transplant are necessary in many cases because of complications and resistance to meds. The one thing that is for sure is to collect the stemcells. If he is in remission, maintenance treatment is #1 so that he can remain at zero for as long as possible. And they can gradually decrease the dosage within 18 months. Monitering the desease is the best.

[guy2010027]

I've known over the past 3 years that some docs are quick to go to stemcell transplants. Once transplanted, less options are available if he relapses. With stemcells in freezer, they can always perform it later, if need be. Once transplanted, his bone marrow will never be the same. Transplantation is not a cure. It is strickly a treatment to break the desease. Read and inquire more about it. Don't trust just one source. Science and meds advance very rapidly about MM. Good luck !

[guy2010027]

These videos were look back at my own evolution (positive or negative) at battling this cancer. I realize now that in more ways than expected, it helped others. I'm happy for that. I don't pretend to have to cure. But we must start with curing our attitude. If we can't change the situation, we must change our attitude towards it. I decided to live with cancer, not suffer from it. I stopped dreaming my life ... I rather live my dreams. With no stemcell transplant yet, I am still going strong.

[calhed1]

Thank you!

I am 37 and diagnosed with multiple myeloma after my 2 year old son fractured my collar bone last Autumn falling off the bed! This led to further investigations due to my age, fractures shouldn't happen that easily.It was a shock to be diagnosed at 36 with an older person's cancer but God has been my strength and next week I go into hospital for a bone marrow transplant.

myelomaunder50.blogspot.com for anyone interested in following my blog.

God Bless.

Caroline

[guy2010027]

@Caroline

Thanks for sharing your story. Don't despair. There is hope. I am the living proof. I was diagnosed in Dec. 2008, not in remission but close. Controling the cancer is the best hope. The new drugs available today are capable for us to maintaining a quality of life. I feel great and still, realizing some of my dreams.

Stay focused on what you like to do ... and do it !

Good luck on your transplant and stay tune as I will be posting new videos in the next few weeks.

Guy

[jasonmason29]

Hello thank you for sharing and hope your feeling better. I wonder why the doctors did not do a serum protein electrophoresis test because that would of shown a gammopathy early with the M-spike in the densetomitor. Take care and hope you are 100%. 

God Bless.

[LWZLB]

Thank you for posting this video. I now know what to expect with testing and etc. Hope you are doing well. My prayers are with you.

[yjiscrazy]

Thank you for making this video and hope you are doing ok. My dad was diagnosed with myeloma a week ago after having an op on his fractured hip. Things like this are really helping me to learn more about the illness my dad has so thank you.

[joserodjose]

my mom is going thru 2nd transplant starting april 2nd @ MD ANDERSON in Houston TX...the 1st time( 10 years ago) was from her own cells saved... but this round will be by means of umbilical cord blood cell infusion and cell from her brother who was a match...GOD BLESS ..fyi we are doing a video journal as