dr grubb: underlying cause Dx!!!
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Uploader Comments (FlyinHyy)
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This video is a response to EDS, HMS and POTS
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All Comments (14)
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@CourtneyRuns hope you get more answers soon!
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@CourtneyRuns That's amazing, do your knees hyperextend too, fold thumbs flat against your palm, square shoulders, hyperextend ankles? you don't have to have all these things just more clues. round "elephant feet" knuckles is another.
I'm part swedish too! hope you are doing well!! hows your pots? have you seen grubb before?
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@Potsgirl22 I'm very glad too! how are you hun??
and yes :) miss riding very much but still love horses like I did when I was ten.
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@AmbivalentBliss thank you for your words it makes me feel like all this is worth it.
I appreciate it, hope you are well!!
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We love dr. grubb too (my daughter has POTS)...and I'm glad you got in to see him. We are lucky enough to actually live in Toledo! Dr. G became Jewish when he married his beloved wife who is terminally ill right now. I hope they can all be together in heaven someday.
mommybobo 10 months ago
@mommybobo I almost starated balling in the hallway talking to him about her, esp after he reached down and hugged me in my wchair. So sad. I went into the bathroom after and cried. He sent me a book, When Bad things happen to Good people a few months later. we sent him one back, When God Doesn't make Sense. I about fell over-he's just incredible!
FlyinHyy 10 months ago
@FlyinHyy Dizzy! I don't know why but today I've been dizzier :P
Haha and horses!.... its not something you ever grow out of!!! :P
xoxo
Caroline
Potsgirl22 1 year ago
@Potsgirl22 I'd still be riding hehhe!!! if it wasn't for that DIZZY you're talkin' about hehehe
FlyinHyy 1 year ago
Took twice to 'count' my 'Like' button, but I did it :=)! keep up the info! We need people to know we are many, and we have a story.
Highest Personal Regards,
Dr. Margaret
DysautonomiaMD 1 year ago
@DysautonomiaMD heheheh thank you Dr M! <3 you're awesome! Yes we do have a story, we are strong together!
FlyinHyy 1 year ago