P4A 2011: Hidradenitis Suppurativa (HS USA)

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Uploaded by on Dec 17, 2011

My project for awesome 2011 video for HS USA. A non-forprofit orgainization that supports research and advocacy for a rare skin disease known as Hidradenitis Suppurativa. For more info pllease visit http://hs-usa.webs.com/

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Nonprofits & Activism

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  • I have HS too hun. I was just diagnosed this year with HS in stage 3, after visiting countless doctors, infectious diseas specialists, and dermatologist, I finally have a name for my humiliating and debilitating deformation. I am so proud that you have come forward to try to find answers for us. I support you 100% and know just what you are feeling. It is time to fight back! <3

  • hey there kid, Your video really touched me. I have a partner who has HS. And I am fully aware of how debilitating it is. I know my partner deals with depression as well. I am Proud of you and your strength to make this video to make others aware.... Great Job! and Thank you! I wish you the very best and wish you well!

  • great video.. im the one who got lyndah from operation repo on tru tv to do the awareness video. congrats on getting out there! :) xoxox

  • Your video really touched me. I have had HS for over 10 years now between stage one and two. People just do not understand when you tell them you can not spend time with them because it hurts to walk. I am lucky enough to have a husband that supports me, but even he will never know what I am truly going through. Please stay strong, I will try to stay strong. And please if you need to talk send me a message here. Thank you for posting this and thank you for your help in bringing awareness.

  • dftba

  • This video is too long for a lot of people, but I'm glad to learn about it. I really hope you get a cure. I did my P4A on a little-known disease (well, mental illness), too, but it's so much worse when there isn't a cure and you don't know whether there ever will be.

  • I am so sorry. I hope that something is done about this!

  • DFTBA!

  • I have no idea when I last walked normally, and I haven't gone without gauze in over 3 years.

    I thank you for the strength to share your personal experiences with it, I've written about some of my experiences, especially around when I had a surgery to help deal with it. No one understands. it's so effing difficult.

  • I have HS also, I'm tired of it, it's annoying to have. I saw your video on the P4A tumblr.

    It is so difficult to explain to other people and just what it is.

    Thank you for sharing this. It is a difficult thing to deal with.

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