how to rebuild a life?

what do i do for a living?
trying to rebuild
Dermatomyositis

Category:

People & Blogs

Tags:

• anewyorkminute
• ssi
• ssd
• Dermatomyositis

[Amybtru]

you go girl!!! meds can help. do what you have to..thinking about you..((((more huggies))))

[aNewYorkMinute]

i think you might be right :)

[oceanbreathessalty]

I really feel for Stace. I can't imagine what that is like, but I want to say that I think you are an active part of THIS community, the youtube community, and I know I look forward to your posts. So keep up the good work on here, and I really hope things get better for you.

[aNewYorkMinute]

thanks sweetie :0

[BuzzieinNJ]

Stacy, thanks for sharing your story. I hadn't checked out your channel until I saw stephstance's response to your vid. Well, my thoughts are that it'll probably be best to not allow a job to define your life since life has changed. Volunteer work when you are able can always be a source of support. Just a thought. Write back if you'd like.

[aNewYorkMinute]

volunteering ---theywant a schedule.. :( i can't give that right now...

[viguidi]

Hello,

my name is Vincente and I'm from Chile.

Here I know a very hard case that is being treat succesfully with BIOMAGNETISM. Learn About it, it is a very friendly natural medicin with magnets.

You can also try Kambó if you're unoff open minded.

Beleve me I don't even know you and I'm telling you this for free.

Good Bye

[tooofiredup]

You may already know this but many of the immune/ inflammatory things have to do with a build up of environmental chemicals in our bodies, the same thing that causes global warming is poisoning us. Detox stuff has been very helpful for me, and cleaning up my personal space, elimination of interior toxins, adding air filters etc... Just a thought. There are many very effective detox methods out there many of which I use daily, let me know if you ever want to talk. Ann

[tooofiredup]

I saw your post, I'm so sorry. It's even harder for those of us who are butch given the whole mythology around physical strength. I don't know what to say about the identity thing, it's hard. I'm in construction and it kills me that I have to have help with things that used to be no big deal, it's easy to forget who I am.

[ButterflyTigeress]

Stacey, im going through yr videos, so im figureing yr now almost 41?, like to know where yr at now & if things are looking up?, you know a very famous Lady called amelia earhart cioned a phrase, "the most constant thing in life is change", therefore nothing stays the same forever, this quote is an absolute, id really care to know where you're at today!, i understand Disability, its my qualification in life, yr body may not do what it used to but yr minds sharp as a tack, "Write A Book", : ). BT

[sheelea05]

I just watched several of your videos and had to watch this one! I have Multiple Schlerosis and can't work and am now fighting with a lawyer to get SS at age 37! It sucks so bad, especially when bills and chores around the house stack up!

I have "alot" of hobbies I do to keep my mind busy. I guess I just wanted to let you know, I cried with you because it was like a page out of my own life!

[Jocelynthebrownfox]

I Have Dermata too I have Had it since i was 5 and now i am 25!!! Keep Fighting girl you aren't alone :)

[chloekttn1975]

I empathize with you Stacy, it's not easy knowing you have a disease.... but just remember you are not the disease, it is something you have. I'm not on disability with my disease, but I found out I had it when I was 29 and it has disrupted and re-wrote every part of my life. It hasn't been nor is it now... easy. I just take it one day at a time.

Keep your chin up, we are here with you, to listen, to help any way we can.

[dkrikori]

i have an idea. i'd love to meet you at 7.7.07

[SadieDammit]

Disease really has a way of shaking one's Etch a Sketch. Maybe you don't have to fill the picture of your future back in all at once. Maybe you can do it one week at a time. You keep speaking in terms of 'half my life',...that is overwhelming and possibly inaccurate and certainly a huge wallop on the psyche. None of us are even guaranteed another half, so please, find some way to enjoy today. Please. I'm so sorry you are this down.

[Doodsjager]

sorry you're going through that. i can't imagine what you're going through, but i hope you find something positive out of this. :-) best of luck.