Rare

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Uploaded by on Jul 13, 2011

RARE, a new feature documentary, follows an inspiring and extraordinary mother in a race against time as she unites a group of isolated people from around the world in a quest to cure her daughter's rare genetic disease. Together, they discover that community, laughter and hope are some of the greatest therapies.

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  • @killpigfuker Me too!

  • Jen Schwalbach sent me!

  • I look forward to sharing this movie with everyone I know. Thank you for making this!

  • Thank you so much for being a strong voice for rare disease research. This looks to be a wonderfully done documentary, I hope to be able to view the entire video. MaryM

  • I hope that a cure is found soon!

  • My 8 year old son has HPS and educating everyone on HPS has been a blessing. Thank you for all your hard work Donna.

  • Congratulations a wonderful video. I'm parent of a boy with Lowe Syndrome. In the case of Rare Diseases the Health 2.0 tool are not a choice, sometimes are the "only choice".

  • my dad was saved by this reseacch

  • Great job....would love to see the whole thing!

  • Great - wish for the cure soon :)

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