Start with the bottom post by AR19335 and the rest of the story follows in the next post. Good luck to anyone else who has RSD. Never give up! Youll make it <3
When the doctors finally said i had RSD and CRPS i started intensive therapy imediatelly. my therapy schedual consisted of auqa (or water) therapy along with multiple hours of regular therapy a day...each day.Today I still going to therapy 3 times a week but i can actually walk now and go up stairs even though it hurts. I still have pain all the time but it is better! in the past few months i have started to reintroduce myself to some volleyball again!
You are doing such a great thing putting your story out there! I am 16 and i have RSD too! It started when i was 12 and had a knee injury playing volleyball.I tried cortizone shots and therapy but nothing worked.i had surgury at chop but things never got better.In the beginning i had very cold temp and color change but after the surgery it was not as bad. untill 2 years ago it got the worst ever. I was in so much pain i was missing so much school.
@1ladav wow. It started when I was 10. I was diagnosed at 11. but the doctors said that I may have had it since I was much younger. Because they said I always had growing pains, but now they said that those "growing pains'' from 1st, 2nd 3rd grade may have been RND. they also said that it may have been caused by my Scoliosis that I got when I was 7 or 8.
@Pinkynose499 That would be great if you could make it to a picnic. I think it really helps to actually meet others who know what you are going thru. My daughter got RND at the age of 12 and was diagnosed at 13. She will be 17 next month and once in awhile she still has some pretty bad pain episodes. You can find her on youtube she is horseygal235 and she is always looking for more friends!
@Pinkynose499 The RND/RSD picnics are usually in September the one for 2010 was early October. Schenley Park is in Pittsburgh, PA behind the Carnegie Museum of History. I hope that you are finding relief from your pain. RND is rough on everyone! As a Mom of an RND sufferer I always wish there was something I could do to take the pain away!
Great video!
Buth how are you doing now 4 years later?
I Hope youre still doing fine?
teabijker 2 weeks ago
this is what u call HOPE & FAITH. a beautiful ending... may god bless
Ojozv3rd3z 2 months ago
I Have RSD and I really wanna thank you for this video! It gives me hope.. So Thankyou!
sannluna11 9 months ago
Start with the bottom post by AR19335 and the rest of the story follows in the next post. Good luck to anyone else who has RSD. Never give up! Youll make it <3
ar19335 11 months ago
When the doctors finally said i had RSD and CRPS i started intensive therapy imediatelly. my therapy schedual consisted of auqa (or water) therapy along with multiple hours of regular therapy a day...each day.Today I still going to therapy 3 times a week but i can actually walk now and go up stairs even though it hurts. I still have pain all the time but it is better! in the past few months i have started to reintroduce myself to some volleyball again!
ar19335 11 months ago
You are doing such a great thing putting your story out there! I am 16 and i have RSD too! It started when i was 12 and had a knee injury playing volleyball.I tried cortizone shots and therapy but nothing worked.i had surgury at chop but things never got better.In the beginning i had very cold temp and color change but after the surgery it was not as bad. untill 2 years ago it got the worst ever. I was in so much pain i was missing so much school.
ar19335 11 months ago
@1ladav wow. It started when I was 10. I was diagnosed at 11. but the doctors said that I may have had it since I was much younger. Because they said I always had growing pains, but now they said that those "growing pains'' from 1st, 2nd 3rd grade may have been RND. they also said that it may have been caused by my Scoliosis that I got when I was 7 or 8.
Pinkynose499 1 year ago
@Pinkynose499 That would be great if you could make it to a picnic. I think it really helps to actually meet others who know what you are going thru. My daughter got RND at the age of 12 and was diagnosed at 13. She will be 17 next month and once in awhile she still has some pretty bad pain episodes. You can find her on youtube she is horseygal235 and she is always looking for more friends!
1ladav 1 year ago
@1ladav wow. that's a little while aways from where I live. I'll ask my parents if they can bring me one time. thanks <3
Pinkynose499 1 year ago
@Pinkynose499 The RND/RSD picnics are usually in September the one for 2010 was early October. Schenley Park is in Pittsburgh, PA behind the Carnegie Museum of History. I hope that you are finding relief from your pain. RND is rough on everyone! As a Mom of an RND sufferer I always wish there was something I could do to take the pain away!
1ladav 1 year ago