Living With Systemic Lupus : Teenagers Living With Lupus

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Uploaded by on Jan 18, 2008

How teens live with lupus symptoms in this home health video.

Expert: Heather Kamins
Bio: Heather Kamins has a Master of Fine Arts in creative writing from Mills College in Oakland, Calif. She has taught and tutored English composition at Mills, as well as at the College of Alameda.
Filmmaker: Dimitri LaBarge

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  • I may have lupus. I was wondering how you/anyone deals with the fatigue? I am always tired, i am fighting sleep and can barly stay awake. I get enough sleep. But I can barly concentrate at school ar doing homework or anything anymore. What can i do about it? I have tried getting more sleep and even less but it has not done anything.

  • yes , my sister was diagnosed w| it when she was 15 & now she is 24 . i agree w| @terrig52 , its important as cancer ! i've watched my older sister go threw chemotherapy , and it look painless to her but looked painful to me ! wonderful video !

  • I was diagnosed when i was 12 yrs old.I'm now14. I had an extremely bad case.The medication i took wasnt keeping undercontroll. It took me two years for it to be kept undercontrol with a number of medications that i now will take for life.Lupus is not a commonly known thing and much more needs to be done about awarness.Thanx for this vid.xxxx all the best.

  • uffa anke io sn affetta da les ma nn ci capisco un cavolo...xkè nn imparate a farlo anke in italiano??

  • I thank her for the comments on lupus. We need to get the word out about how bad lupus is.

  • Great video!! My 4 year old has lupus...she is a shinning star!! Children, teens, even adults need to know they are not alone!!!

  • Great video!! My 4 year old has lupus...she is a shinning star!!

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