SMA Syndrome

One girl's ongoing fight with SMA Syndrome, one of the rarest gastrointestinal disorders known to medical science.

Category:

News & Politics

Tags:

• superior
• mesenteric
• artery
• syndrome
• sma
• rare
• disease
• disorder
• gastrointestinal
• casting
• crowns
• praise
• you
• in
• this
• storm

[RedViolin87]

@Skinnybonezz

And thank you for being such an amazing blessing, inspiration and encouragement to me through it all! <3

[Skinnybonezz]

This is beautiful....A powerful amazing Video to Help raise awareness for SMA. Thank you for taking the time to make a video. You have the soul of an angel. God Bless you my sister-in-christ. We will get through this.

Love, Skinnybonezz =]

[SMASyndromeAwareness]

@chillyandlogan - Hi there, I am so sorry that your boyfriend is suffering from this :( To answer your question: Samantha Mina is the girl in the video - she was featured on an episode of Discovery Health Channel's "Mystery Diagnosis" which you can watch by visiting my channel.

[3301ttp]

Watching this video is like reliving the worst times of my life I ALMOST DIED TWICE from this. I was misdiagnosed time and time again, I was told that they couldn't find anything wrong with me and all while i'm in tremendous pain losing weight quicker than a cancer patient cause I couldn't keep food or water down finally one of the Doctors at U.C Hospital diagnosed me with SMA Syndrome. I was placed on a feeding tube 1st x 6 months 2nd x 3 and I got better but I know that it can happen again .

[cbryson31]

My wife was diagnosed with SMA about 1.5 years ago in California, after going in and out of the ER we finally went and seen a doctor at the UCLA medical center and after numerous test they narrowed down to SMA Syndrome. She had surgery and after about 6 mo she is feeling a little bit better. There really does to need to be more awareness about this rare disease

[LebanesePunk94]

@mljohnson05 what did they do to correct it?

[mspimp1981]

I was diagnosed with SMA in 2007 after a battle of my own. Had surgery to go around the blockage after finally being diagnosed.( not keeping food down for over a week) At the ER the doc, surgeon and radiologist had only seen it in textbooks. I had to wait to see what the surgeon was going to do because he didn't know. His name is Dr Hugh Taylor in Winnipeg, MB. I thank them for saving my life. Sadly I still have problems but they have no answers now. Blockage is gone..now what..? -Gillian :(

[moshn4k3d]

@Skinnybonezz My 27 year old daughter Heather was diagnosed in December of 2010 and was misdiagnosed in October and November of 2010 and we went to Loma Linda Hospital in California, The doctors were so surprised at Loma Linda when the blockage was on cat scans that were taken in April of 2010 and no doctor ever informed us of the problem. Three surgery's in 3 1/2 months she is now eating and still has problems. Contact me at: forget_me_not_19@yahoo.com if you want more information

[moshn4k3d]

@TheLacycat, My 27 year old daughter Heather was diagnosed in December of 2010 and was misdiagnosed in October and November of 2010 and we went to Loma Linda Hospital in California, The doctors were so surprised at Loma Linda when the blockage was on cat scans that were taken in April of 2010 and no doctor ever informed us of the problem. Three surgery's in 3 1/2 months she is now eating and still has problems. Contact me at: forget_me_not_19@yahoo.com if you want more information

[TheLacycat]

@Skinnybonezz

you are in my heart as my 6 year old daughter has been diagnosed with sma syndrome.

[VIPER534]

heya Redviolin & Skinnybonezz.....Jay here from facebook. I couldn't help myself. Had to watch this again.