Dopa Responsive Dystonia
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Uploaded by flatspinach on Mar 25, 2008
Harrison and Gracie Colegrove on GMA 2002. For more information, visit http://www.drdcentral.com
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Uploader Comments (flatspinach)
All Comments (36)
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I was fortunate enough to stumble across Harrison six months ago. He is the sweetest guy I've ever met, has such a great heart, and you would *never* guess he didn't learn to walk until he was eight. He has become my best friend, and if he didn't take medications on a daily basis, I never would've known anything was ever wrong. Harrison is the happiest young man I've had the luck to find, I rarely see him upset or even angry.
Miracles are possible, these two kids are prime examples of that.
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I actually have this condition. It was like a miracle pill with in two weeks all my symptoms went away. It started in the six grade and not medicated properly until I was 19. Before that they were just guessing. I was told I had a dopamine deficiency by a Parkinson's diseases specialist 17 years ago. I didn't care what the name was I was glad the medication worked. Now 36 I was told I have dopa responsive dystonia.
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@flatspinach Hi, I tried to get access to the message board at drdcentral, but up to now the webmaster didn´t activate my account.
Is it possible to reach you by mail or on any other way?
Thanks for your help!
Regards
Derek
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aww there so cute god bless them
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wow what amazing kids
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It's incredible how medicine is getting so effective.
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Do a Google search on "Ed Impala" and you're find an ABC news video about a man in WA state who was diagnosed after 30 years when his brother found this story on the drdcentral website.
flatspinach 1 year ago
@flatspinach
Hi my Name is Derek and I would be very pleased to get in contact with you. My dauther has just been diagnosed "DRD" or what is also been called "Segawa-Syndrome".
Would be nice to hear from you.
Regards from europe
dashby2004 1 year ago
@dashby2004 Hi Derek - Just post a message to the message board on the main drdcentral web site.
flatspinach 1 year ago
i have two doughters with the sane condition, would love to get in contact with you!!
bonello2100 1 year ago
@bonello2100 Go to the drdcentral website and post a message to the message board to contact drd patients and their families.
flatspinach 1 year ago