Postural Orthostatic Tachycardia Syndrome Maybe? (POTS)

http://www.brianonearth.com also quick info on POTS http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome

Category:

People & Blogs

Tags:

• pots
• anxiety
• agoraphobia
• panic attacks
• dizzy
• sinus tachycardia
• lightheaded

[motherhen20684]

Has anybody listened to you yet. Your parents need shooting surely they can understand!!!

[silentjealousy77]

@motherhen20684 no nobody has and I am still the same

[outterspaces]

Wow, that phone call was creepy. Do they call you at all? Ask how are u doing?!

BTW, great videos.. i just discovered them. I'll check the blog if it's still valid.

Be well!

best from Greece

[silentjealousy77]

@outterspaces My mother calls, but neither call to see how I am doing when it comes to this issue. Yup blog is still valid. :)

[tgz1000]

Well, I do know that during times of extreme stress when I was first coming off of my benzos, my heart rate would increase and fluctuate wildly whenever I would walk and even moving around would seem to take quite a bit of effort

[silentjealousy77]

@tgz1000 yeah I have been off those for 15 months. :)

[Wendywen74]

Did you ever get diagnosed?

[chara1ampos]

POTS is typically diagnosed by an electrophysiologist (heart rhythm specialist) via a tilt table test. It would help if you keep a log of your symptoms, blood pressure & heart rate to show to the doctor. My doctor told me to measure them once lying down, then stand up, wait exactly 2 minutes, then measure again, and write down the numbers. No need to measure while sitting. If you are diagnosed with dysautonomia, it may help you get disability.

[chara1ampos]

Hi Brian. I have POTS and I got it after sedation with Midazolam+Meperidine for endoscopy. I haven't been able to prove the sedation caused it, but at least I got it diagnosed.

[laserlion77]

Would you be able to go to a cardiologist? Every doctor that I was seeing was telling me I was experiencing anxiety then I finally just was like whatever I'm just going to go to a cardiologist and I went and he diagnosed me with POTS, and I never even mentioned that I thought I had it I just told him my symptoms and then he did some test and I was diagnosed.

[bobosinhell]

@silentjealousy77 HAHAHA my parents never call, either. I'm sorry, all I can do is laugh at the uncaring obliviousness, mostly because I know we're both smart enough to overcome it. Notice it's the idiots who are unfeeling drones; I can tell by your speech that you're smart. You need to show this video to a doctor, the part with the pulse rate. Keep going to different ones and showing them until they do something. See a cardiologist. Even if it's anxiety, maybe medication could even it out.

[potsinfo]

When I looked at you, it was like I was looking at myself 7 months ago, lol, I did exactly that sitting and getting checking pulse. - POTS is a rare syndrome, many doctors do not know about POTS for the following reasons: it's newly recognised ( since 1993) and this is a specialty of Autonomic Neurologists. You do not need any blood tests or x-rays to "prove" you have POTS, according to literature if you have jump of 30bpm from supine ( laying down) to standing you have POTS. Pls msg me to talk

[byteme58]

I feel sorry for you, I have POTS. I know how hard it is to understand and to have a doctor properly diagnose you. I blacked out after one of the "white outs" you mentioned and spent 22 days in the hospital before they figured it out. A pulse increase from laying to standing of 30 beats per minute is POTS. There is a tilt table test they can do to prove it.

[tmleafs75]

My heart goes out to you. I feel the same way and have had anxiety for about 20 years. This is hell...perhaps I can contact you on here and we can make conversation sometime...gl.