The Mommy Cure for CF

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This is a message to cystic fibrosis. You're a disease, and we're going to find a cure.

I have a son, named James, who is eight years old. He has Cystic Fibrosis. And the very first thing I read was the life expectancy was 33. It was overwhelming. I hate cystic fibrosis.

When we first found out that James had CF, we felt devastated and alone.

But we are not alone.

In the 1950's, the median age for survival was only three years of age. So having new medication in the pipelines is very exciting for us.

We will always fight cystic fibrosis until we find a cure.

We will fight for our sons, our brother, our nephew, our friends. We are an army. We are more than dreamers. We are warriors.

Our goal is not to limit, but to eliminate.

We will fight you until a cure is found for all 1500 mutations. And when we find a cure, we will celebrate. We will party. It'll be the greatest funeral ever. We will destroy you.

We will find a cure. Cystic fibrosis will die. And we will live!

Category:

Education

Tags:

• Mommy
• Mom
• Mother
• Cystic
• fibrosis
• child
• safety
• disease
• cure
• doctor
• health

[winterskies12]

I'm in the hospital right now for a tune up. It came as a surprise when they admitted me, I wasn't feeling that bad. I've missed the first week of my senior year. CF is beating the crap out of me, and I hate it.

[HowToMoms]

@winterskies12 I am so sorry that you are missing your first week of your senior yr. That sucks! My son was hospitalized for a surprise tune up last December as well. It's different for me because I am not the one living with CF but I do see my son having to live with it. CF is so unpredictable. I too hate CF. I hope that your tune up goes very well and you come out with great PFT's. I would love to hear more from you about your journey with CF. I remain hopeful a cure will be found. Please sub

[6teenNikkiandJonesy]

0:21 she has hazel eyes and at 0:31 she has blue eyes...?

[HowToMoms]

@6teenNikkiandJonesy Nice catch. My husband heard me say that I wish I had blue eyes, so when he was editing, he threw that in there as a little surprise for me.

[multibuddhaneo]

@Drewriders1 Anyone who doesn't still wear their blinders could see something very wrong is going on and has for a long time regarding disease cures.You think the multi-billion dollar pharma companies actually care about the well being of other human beings?? These companies control what we call the government.You think the makers of anti-depressant drugs care that what they made cause a dozen or so birth defects?? Hell no! Go to google and type in 'mysterious deaths of microbiologists'.

[Drewriders1]

@multibuddhaneo Are you actually saying the federal government holds patents regarding CF and are keeping it from public? Do you have proof of this conspiracy theory?

[tf1977sled]

I'll tell you the cure for cf or any genetic disease or retardation or midgets. It's called don't have anymore babas. Forced sterilization and euthanized.

[qABDULp]

الله يعافيه ..

[Hardeleiar]

@HowToMoms

If I am not mistaken, some lab rats which we had breed them to developed CF had been cured by gene therapy, but around 30% (or was it 50%? cant remember) of the cured ones developed cancer. among the majority that did not cured by the same method also developed cancers. so people are working on a safe way to inject the gene or thinking some alternative...

[winterskies12]

@HowToMoms I'm starting to turn the corner, they say. I feel like I could go back to school right now and be just fine, but the doc is holding off on letting me go just yet. :( My PFT's were only 33 when I came in, and they're slowly coming back up. CF will just randomly knock ya flat, thats the worst thing about it.

[Michaela4444]

I have cf . But I am doing anything I can to fight it. I have talked at Indians games browns tailgate parties and colleges :) I am proud to say I am fighting this disease! One thing that is amazing right now is the vertex study I'm so excited about it!!!

[Michaela4444]

I have cf and I do anything I can to get awareness out there. I have talked at Indians games browns tailgate parties I want this disease to end!

[xxxl0vzpinkbuneezxxx]

@HowToMoms Your welcome <3 Together we WILL find a cure for CF :)

[zalras1]

As a fellow CF patient i'm glad their are parents out there trying to raise awareness for this illness. Despite the naysayers and internet attention seekers, you are doing a great thing and you should be proud as a parent. The medical field has made great strides towards the treatment and eventual cure for CF and this trend will naturally continue.