Cholangiocarcinoma (Bile Duct Cancer) Surgery

Bile Duct Cancer Tumor Ablated
My goal is to get this on U-Tube so I can add the info. on the Cholangiocarcinoma.org site to give others hope if removal of their tumor is not possible.

I was diagnosed with Stage III Bile Duct Cancer (Cholangiocarinoma) on September 11, 2009 at the age of 47 years old and told I would probably live 2-3 years at the longest.. The tumor was about the size of a softball and was unable to be resected (removed) because of it's location (in both lobes of liver and they thought it was attached to a main artery). I found an amazing doctor at Baylor Dallas who was aggressive but extremely compassionate who did a procedure that saved my life ~~~by the grace of God. The procedure was called microwave ablation (he actually disintegrated the tumor). The doctor who I highly recommend is Dr. Kuhn at Baylor Dallas. After the surgery and chemo, my scans are clear and I am feeling excellent. May this give you hope if you have been diagnosed with this cancer.

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[twillafontenot]

I am so very sorry. I feel very grateful for each and every day, but my heart aches for you. It was strange I was diagnosed one day to the year of my mom's viewing---so please take care of yourself. There is nothing like the loss of a mom. My mom was loved deeply and she is deeply missed. I know one day we will be reunited in heaven & what a glorious day that will be! I trust God is bringing family closer to Him! I pray God blesses you during the Christmas season. Lovingly, Twilla

[twillafontenot]

I truthfully did not have alot of symptoms. Mainly just fatigue and alot of bloating. They have found that most people with this cancer also have stomach issues---usually ulcerative colitis is a link. I ate fried foods and felt like I swallowed a golfball and they found out I had gallstones. By God's grace, that is when they found the tumor. Usually, people are jaundice bf they discover it. God is good. Blessings and Love!

Twilla F

[MrDerek1273]

I have stage 4 cancer, but too many tumors for surgery.

[horacioinzunza]

@MrDerek1273 my mom has this type of cancer do more information she got this surgery in st vincent hospital in los angeles ca they specialize in peple with cancer and one year later the tumor came back all her suffering with chemo therapy did not work it actually ruin her immunie system even more so i suggest more inforamtion in chem therapy and this procedure

[twillafontenot]

@horacioinzunza I am so sorry about your mom. How is she doing?

[twillafontenot]

@MrDerek1273 I am so sorry! I pray God watches over you and gives you hope.

[qiblahtravel]

my father has just been diagnosed with Cholangiocarcinoma and been given a life expectancy of a few months. Contact details of Dr Visser at stanford would be much appreciated. please email me on osman@qiblah.co.uk or call on 0044 7590678817. thanks

[eliserchi]

@shawnprissy143 Thanks a lot...i'm better now..life goes on..you were right.Thanks for your words.

[funkyflights]

@twillafontenot

Your very lucky.... My grandfather died from this disease in 3 weeks after getting Jaundice. I believe god is good but I always wonder why he would choose someone to live but yet others die...especially children ... I feel god allows free will to play out and you were fortunate...I"m not saying miracles can't happen I"m just saying I can't imagine god choosing you to live but letting a 4 year old child die..makes no sense... I"m glad your ok though...

[jamdic70]

My mother died from cholangiocarcinoma, it was only two montns since she was diagnosed to the day she died

[Lupy5]

@MrDerek1273 Are you okay? What treatment are you doing?

[rebelyelln1]

What are the signs and symptoms of this?

[santosomar]

I am very sorry for all who have gone through this... My father in law just went through this two days ago and luckily the surgery was a great success!!! Initially, there was not a lot of hope based on the diagnosis. However, the doctors were able to remove the tumor completely. Hopefully, everything continues ok...

[0742167378]

at some point the dr. says something about a vaccine. can they make a vaccine based on someone's cancer? to be used of course only that person