Every Breath Counts

Canadian Cystic Fibrosis Foundation video spreading awareness about CF

Category:

People & Blogs

Tags:

• Cystic
• Fibrosis
• Every
• Breath
• Counts

[butterflychiqx3]

my little sister has cystic fibrosis shes eleven , shes curretly in the hostpital i am 14 i am scared for her , i dont understand her condititon something in my mind wont fathom it i feel so far away from her im supposed to be her best friend, and i cant imagine life with out her, i was in church today and i started to cry , im scared i feel so small next to her, arent i supposed to be the strong one?

[rylanlogistics]

If you dont know what you are talking about then dont say anything at all most people dont know they are carring the cf gene i didnt Robert was my fourth child who passed away jan 2nd 09 at 21 and he lived every day the way he wanted to and did everything he could in his short life and he would never of wanted it any other way he was my hero i miss you baby

[gladfish5]

My name is Glady, I'm a 31 yr old girl with CF...I've had my share of probs w/the disease...what I've learned is you have to enjoy the good days when they come, and HANG IN THERE through the bad times, for they dooooo pass!!! Though my health isn't the greatest, I've managed to get used to being ill and live as normal as I can, which is all a person can do with CF. Some advice...DO YOUR PHYSIO!!! At my age I've realized I could have been better longer had I done it more often when younger!!!

[JoeCentraI]

I feel so bad . . .

I wish they could find a cure soon , so they are able to save

many lives of many children & people . Have faith .

[codeblue96]

i have cf and my cf is acute and i am going on the transplant list and i have heart problems and dibeates and stomach problems so it hard i just dont know how hard it is for my mom and brothers

[2gramcracker]

To Ardent94.... maybe your parents should have checked to see if they were carrying the ignorance gene....

K

[Norb1t9]

a lot of people do not go for genetic counseling before they get married. they normally just go to the priest for counseling if they're catholic. then again you're a child so yes it's good to ask questions like this because one day you will get married and have kids yourself and now you would know what to do.

[Vaeth13]

ardent, people who are carriers do not have any symptoms. So, unless you have had your genome sequenced or tested specifically for genetic defects (something that is still very expensive and not readily available at the moment, and so imagine 10 years ago people had no access whatsoever to test for CF). And then because there are over 1500 different genetic mutations (although most are incredibly rare), you need to find two people with and identical genetic mutation to have a child with CF.

[ardent94]

but if both parents know they are carriers shouldn't they think deep about their decision to have a baby?? by the way im a kid myself and just asking questions.

[cweger1]

You should be ashamed of yourself. Our daughter was our first born, there is no way to know if you are carrier before pregnancy. We were not aware we were carriers until our daughter was 2 1/2 years old. Parents who find out they are carriers then have to make the difficult decision on whether or not to have more children and how to do so.