Every Breath Counts

if it is a fatal disease then maybe parents who are both carriers should think about other ways to have babies (sperm or egg donor)? Why doom children if you know you are carrying the problem gene??

If you dont know what you are talking about then dont say anything at all most people dont know they are carring the cf gene i didnt Robert was my fourth child who passed away jan 2nd 09 at 21 and he lived every day the way he wanted to and did everything he could in his short life and he would never of wanted it any other way he was my hero i miss you baby

You should be ashamed of yourself. Our daughter was our first born, there is no way to know if you are carrier before pregnancy. We were not aware we were carriers until our daughter was 2 1/2 years old. Parents who find out they are carriers then have to make the difficult decision on whether or not to have more children and how to do so.

but if both parents know they are carriers shouldn't they think deep about their decision to have a baby?? by the way im a kid myself and just asking questions.

ardent, people who are carriers do not have any symptoms. So, unless you have had your genome sequenced or tested specifically for genetic defects (something that is still very expensive and not readily available at the moment, and so imagine 10 years ago people had no access whatsoever to test for CF). And then because there are over 1500 different genetic mutations (although most are incredibly rare), you need to find two people with and identical genetic mutation to have a child with CF.

a lot of people do not go for genetic counseling before they get married. they normally just go to the priest for counseling if they're catholic. then again you're a child so yes it's good to ask questions like this because one day you will get married and have kids yourself and now you would know what to do.

A type of new treatment was discovered this February! A sort of emulsion was developped that supposedly can break through the mucus, and attack the common lung infections which result in the majority of deaths in CF patients!

My daughter has CF, this is a very important subject for me. I prey every day for a cure.

Hi.My best friend has just died aged 14 yrs of age.He spent 9 months a yr in hospital since he was 2.He needed a heart and a lung transplant.If anyone here is living in ireland please fundraise or give money 2 help build a foundation in ireland there is not 1.the population is so small that there is not many matches.Please help and donate or fundraise. thankyou. great video. God bless everyone with cf!