Mystery Diagnosis - FOP Part 4
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@lostindreams3 Um, it doesn't work that way. The oldest person with it was 40 years old and he still experienced these bone growths the entire time. It had nothing to do with maturing.
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@lostindreams3 it don't work that way. her body treats her muscle like bone. there is no "spot sending a message to the new bones"
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beautiful, just beautiful. Im very proud of her ( y )
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I feel very, very lucky, knowing that, while I have Crohn's Disease, and several other medical problems, I could have something much worse. FOP is, to me, one of those "much worse" diseases that I could have had. To know that one day the disease will eventually surely kill you, no doubt about it, would be terrifying. It sounds slow and painful. This young woman must be very brave. I hope that watching successful, happy people like her can inspire me to be less bitter about what I have.
11 months ago 3
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Aww what an inspirational young woman. I hope they do find a cure for her and all other sufferrers of this horrible disease. Xxx
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OMG SHE IS VERY BRAVE AND KINDHEARTED!! ashley thank u for being so brave that we will get to know about this disease through u. =)
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This disease is horrible, i feel so sorry for her for what she went through, i'm glad she has a loving family. I hope the cure comes really soon. You have a great attitude, live with it, i learned this too and it helps so much better to live with it then been sad or bitter over things in our lifes. Thanks for sharing, best of luck.
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i shed a tear watching this.
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so FOP happen in the birth proccess, including DNA?
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if you try and remove the bone the body will 'heal' the damages area with more bone and just make it worse
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as part 3 clarified, surgical intervention simply triggers further ossification events
contingocoins 2 years ago 5
I'll bet if someone makes it to adulthood I would think it would stop progressing because they'd be done growing. Such a tragedy about the amputation. I wonder if they couldn't find the spot that is sending the message to the new bones to stop.
lostindreams3 2 years ago 5