CNN report on Reflex Sympathetic Dystrophy

Reflex Sympathetic Dystrophy (RSD) is a chronic, painful, and progressive neurological condition that affects skin, muscles, joints, and bones. For more information on this disorder, please visit www.rsds.org

Category:

Education

Tags:

• CNN
• jennybean416
• Reflex
• Sympathetic
• Dystrophy
• RSD
• Complex
• Regional
• Pain
• Syndrome
• CRPS

[ShotgunBarbie1]

I have suffered with RSD/CRPS in my right leg for 7 yrs. Dr's had me on an INSANE amount of opiots and benzos along with countless spinal injections. I was hopeless and my life had become disasterous. The pain was not getting better. But worse. I found Dr Peter Pretzkop who runs the Pain Track at BFC in CA. When I arrived, my leg was blue, cold, swollen, chronic and lifeless. It is now pink, warm and works just like the other one! And I am drug free. There is hope! Look him up. I have a life now

[chronicallyjillian]

the blocks. If you're getting a block that is trying to treat RSD in your legs you get the shot in your spine.

[chronicallyjillian]

is affected into your stellate ganglion nerve, hence you get a stellate ganglion nerve block - to try to put your nerve to sleep in hopes that when it wakes up it will have reset itself and will work properly. Nerve blocks are more likely to work the earlier into RSD onset they are done. Generally you should not have more than 9 of them. Doctors who recommend blocking the nerve over and over and over with no result are likely doing it because they make a lot of money from

[chronicallyjillian]

@junebug4ca Killing the nerve is a really bad idea because it won't cure the pain. Burning nerves or killing them is NOT recommended anymore... any doctor who is current with literature should know better treatment options. Patients who burn the nerves in order to kill them end up in worse shape than they were before, which is saying something!

As for the epidurals - I think you're talking about nerve blocks. They inject a lot of medicine into a nerve - for example if your right arm

[Zivilein]

I have CRPS on my right arm. My whole life turned upside down. I'm living in Germany. I never met a doctor who do ketamine treatment. So it would be really interesting where Dr. Schwarzman send his patients! Maybe you can send me an email to tell me? Email: christine.tertilt@gmx.de Thanks for letting me know! I hope that we all find cure someday!!!! xx

[kepleygal]

i have this....it's a life of pain, and only pain!

[MissJessyeNorman]

@maciejwrotek Very insightful of you to say that! Lyme disease can trigger RSD, so there may be some yet unknown correlation, although it is different. Classically, RSD is triggered by a minor physical injury, like spraining an ankle; some poor souls have the type of RSD that starts all on it's own, without any initial injury at all. RSD is also considered by far the most painful chronic pain that one can suffer, so I imagine that Lyme disease is less painful, although I'm sure it's awful too.

[misstinywho]

My 12 year old has this. It is heartbreaking to see her crying and there is nothing I can do.

[atvchick09]

I am 15 and have it full body with organ involvement!

[LipglossLullaby21]

I have it in my right hand, I'm 17.