Occipital Neuralgia Part I

Bobby Sorrell and his wife Amy give you a first hand look into the world of an Occipital Neuralgia patient and the surgical option they choose to improve their situation. Filmed for the Texas Trigeminal Neuralgia Support Group in association with TNA and UT Southwestern Medical Center.

Category:

People & Blogs

Tags:

• trigeminal
• neuralgia
• face
• pain
• surgery
• Medtronic
• device
• occipital
• Bobby
• Amy
• Sorrell
• Tony
• Whitworth
• electric
• shock

[lvrice75]

God Bless you Bobby. I hope the procedure was a success and that you are now pain free. It's great reading everyone's comments, knowing that I'm not alone in my struggle. It is my prayer that all headache suffers get the relief that we desperately seek.

[4blackbears]

I really like this video, I have the same thing. yes, it very painful,I hope u are still feeling great, i hope it will help me.

Chris

[ladyhklberry]

And I thought I was dealing with folks who were oblivious to what I was dealing with. It's both refreshing to know I haven't lost my mind and that there's others who know how to relate to me. I just wish the entire medical community would be receptive as what the doctors seem to be in this video. As a a retired Physician's Assistant it's really hard to convince some doctors that there's such a thing as pain this bad. From the bottom of my heart thanks to those who can relate to what I've said.

[gingergrint]

i've had occipital neuralgia ever since i was born, and it went undiagnosed until just last week. i thought i was crazy, the doctors even though i was imagining things. i'm so sorry that you were in that much pain, but i 100% understand how you feel! mine is on my lower right back side of my head, and it feels like i'm being stabbed and it is a pain that i've never felt anywhere else. i hope that this works for you, and that you are feeling better soon!

[bdeja24]

I too have cervical neuralgia from having cervical kyphosis. The pain is exactly like you describe and almost in your exact spots (worse on left side of base of skull). This is the worst pain I've ever had, my headburns, feels like I'm being stabbed. I've had tremendous pain everyday (mostly at night) for 3 months that initiates temporal migraines. It has been so debilitating that I am on disability from work. I feel helpless and depressed. I've tried everything from anticonvulsants, pain meds,

[corporacionmonstruo]

BOBBY: i hope you feel better,really,i have GLOSOPHARYNGEAL neuralgia myself.

you have lost friends beacause of your condition i heard your wife,let me tell you they were not reall friends,friends don´t abandom someone with this,friends have to understand that you may have change your mood beacause of the pain.

[jer2797]

his video has made me feel emotionally better, i was diagnosed with occipital neuralgia, although i am not as bad as bobby i understand the pain he is in, unfortunately i do not have insurance and nerve blocks did not work, not only did they not work they are expensive. thank you for posting up this video. i hope that someday i will feel better...

[bobbyjanson1]

Bobby Joe and Amy have become my family....

I too have trifeminal neuralgia as well as occipital neuralgia... and this surgery is well worth it... Bobby, Amy and them their daughter came to be with me for my surgery and they helped me through it.... Now I am helping others...

[bartman67041]

I also have trigeminal and occipital neuralgias (and tmj)....I finally know that it's not "all in my head" so to say...i have been taking narcotics for years, and am tired all the time....i thank God for this video because it shows that there is hope...i pray that this man is still doing well...he has a good wife...when i was diagnosed, my wife thought i was just a "druggy"so to say...she didn't understand what i went through..having a good wife is a blessing..i am getting this done soon. amen.

[jrpestal1911]

i have occipital neuralgia and i am about to get this done in july. is it worth it? i am very scared! i have had this for the last 3 years and I am at the point where i can no longer work. I am only 22 years old i want to have a life a head of me! please someone let me know more information. I am so scared.. . even though i have gotten a lot of info from my doctor i would just like to know from someone who has had it first hand..