Daily Reality of a severe ME sufferer
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I have CFS. They are lumped together because they are the same thing. ME is an outdated term for CFS and is usually only used in the UK. I have it. It used to be severe, I am still getting over it. But this IS NOT THE WAY. These videos of your hopelessness and despair will lead you to no where but an early grave from your illness. And believe me it HAS killed. I used to lay in bed for weeks thinking "I'll never get better". That is the quickest way to never get better. You have to take action.
supahfreeak 3 weeks ago
ME is not CFS - Check out AHummingbirdsGuide to learn the differences. They are two distinctly different illnesses that have been lumped together.
reddolphin65 6 months ago
there is a boo called "Aids The Crime Beyond Belief" by Donald W Scott. Read it and then you may gain some understanding of cfs/me. take care, and tell your friends
steveruston 11 months ago
I had a friend who was my roommate in the mental hospital I was in. I got ME from a medication they gave me that made me throw up for 3 months in there and said I had to take it. Anyway about my friend he had M.E and was sectioned and they gave him drugs without his consent and he had no choice but to take them. He got so much worse from the anti-psychotic drugs they were forcing onto him, I will never forget him and what the psychiatrists did to him, that memory is with me for life!
835283 11 months ago
Why do we have to suffer, it is 2011 for GOODNESS SAKE 2011, 21st century and yet there isn't a cure for a lot of diseases today.
nz804 1 year ago
i was just like this lady, couldnt walk, eat drink swallow etc. was in such pain and i cured my self by training on the lightning process. i hope all people with ME get help with Lp.linda could posibly make a full recovery from having ME with Lightning Process. its definatley worth trying. people with neurological ME and MS have recovered fully too .
OhSleeperAwake 1 year ago
It is so distressing to watch you in so much pain and discomfort Linda. I thank God for the way you have allowed into your world so they can see just how severe ME can be.
kaazoom 2 years ago
Please take good care. I have the same disease now for about 5 years. Let's hang in there and dream of a day when we can Live again! Biggest Hugs.
paradisenowlost 2 years ago
Linda,
I am so sorry that things are that bad for you again.
Ther is nothing to say really.
If I could I would pay for you to have every test available and then every treatment you could tolerate.
Much love to you both,
xxx
deadgirldreaming 2 years ago
Greg...my thoughts too are with you.The images so disturbing of the suffering of a loved one..yet so unsurpising that some patients are suffering on this gross scale. The findings much publicised over the last few days I hope give you some comfort that the tide is starting to turn. The tragic irony yet again is that these findings come of no surprise to many. Immunodeficiency, neurodegeneration via neurotoxins,inflammatory processes seemto be beyond the comprehension of some cruel 'doctors'
sly1958 2 years ago