Re: We want YOUR NZ endometriosis story

Amy's Story

Category:

News & Politics

Tags:

• endometriosis
• New
• Zealand
• health

[flaplilbit]

thanks for the nice vid and hsaring your story. im a 15 year old girl who might have endo and i am going next week to find out.

[texasgirl1]

Really nice video we need to find a cure for endometriosis

[Kathylouu]

I volunteered as part of a study group at Duke University in North Carolina in hopes of helping to find a cure for this. It is interesting that the LEAST supportive people I knew while I had it, were other women that did not have it. It is horrible and I sure hope a cure is found soon. It really breaks my heart to see women with this, Fortunately my daughter does not have it (I pray thousands of prayers that she would not, who knows maybe it helped.)

[Kathylouu]

I suffered from age 12 until diagnosed at age 21 by surgery. I tried to tell my docs how bad off I was and they would not listen until I got 'dramatic' and demanded a hysterectomy at age 20. I went on med and it helped alot!!! At age 40 (after being tired of it all) I did get a hysterectomy. I am now 49. Bit of advice-please wait as long as you can before getting a hysterectomy ig you decide to. It is not an easy thing to go through. Try to hold off till about 42 or 43.

[DanielleMarie23]

Just had my first surgery yesterday for endo, I'm going to upload a vid soon because as I'm sure you've noticed, it is hard to get a diagnosis of endo if you're a younger woman because many ob/gyns dismiss anyone under 30 or so because it's "outside the profile"

Thanks for sharing your story, if more young women did perhaps the assumption that it doesn't affect those under 30 would begin to dissipate

[WinALiteMarketing]

Negative Ion might help, check my YTube channel for testimonials!

[FruitTingle]

Hang in there Amy, I wish I could tell you that it will get better with your age, but alas it does not from my experience. But I certainly hope that the NZ government provide coverage soon!

[ozmonto]

Hey Amy:)

I'm actually a fellow kiwi who is in remission from endo ever since having the mirena iud inserted! I've had 5 surgeries, of which the last two have shown no endo although severe adhesions. I also had my uterus stitched right up because it had fallen into my pelvis ( most likely due to adhesions). Thankfully I'm in remission but am still suffering with pain every day! I think if people can avoid having surgery they really should. All the best hun, great vid! Xox

[anghellic1621]

ive had it for two years and have been on the lupron shots for six months and i still have cramps. the worst is it spread to the back of my pelvis and causes severe throbbing pain in my lower back every day. I'm on perocet,dilaudid, ambien, and more and i hate it i hate everything about this disease. im 22 and its completely taken over my life. i dont know what to do...

[Spunmearound]

I just got diagnosed with it 1 month ago. I was put on birth control, and I don't plan on knowing for sure if it will even help. I'm very frightened, and there is nothing out there that is solid. No tried and true ways to deal with this. I can't afford to be in surgeries and recovery, and pain killers only do so much. I guess this isn't a positive comment, but I agree, there needs to be more attention on endometriosis. Too many women are affected by it.

[donnad23]

i am 18 and i suffer from this. ive had problems since i was 10 but got diagnosed at 17. my symptoms include: painful periods, very irregular periods,low back, groin/leg pain, horrible fatigue and nausea, constant cysts and pelvic pain. it definalty keeps me away from the things i love as well. mine came back within 2 months after surgery. WE NEED A CURE!!!

[X4592]

Was diagnosed yesterday. It's truly a terrible, painful condition. Good luck to all fellow sufferers!