Great stuff, guys. I was diagnosed with SMA as well but not type 1. Living testimony that fighting it does work. As she gets older, you must keep her moving....
Amazing to see Shira is now 5 years old! Her dad (and family) have done a wonderful job with her! Given the circumstances, Shira seems to be thriving in her own way under the constant care of her father and I pray that SMA Cure is found soon!!
I have type 2, as well as my younger brother Alex. He is much weaker than me. I give you a lot of credit for what you do everyday... last year the same thing happened to him, and he was intibated for a month because of collapsed lungs from a cold that turned into full pneumonia within a day. I am 17 and he is going to be 16 soon... research is getting so advanced... I hope it not only benefits the lives of me, him, and your little Shira, but every other person fighting this. =] She is adorable.
Great stuff, guys. I was diagnosed with SMA as well but not type 1. Living testimony that fighting it does work. As she gets older, you must keep her moving....
backyardsounds 3 months ago
Amazing to see Shira is now 5 years old! Her dad (and family) have done a wonderful job with her! Given the circumstances, Shira seems to be thriving in her own way under the constant care of her father and I pray that SMA Cure is found soon!!
jaemarie830 1 year ago
WOW YOU GUYS ARE AWESOME
chioguenther 2 years ago
Good job you guys! Dont stop fighting. You inspire me.
TopJimmyWinn 4 years ago
I have type 2, as well as my younger brother Alex. He is much weaker than me. I give you a lot of credit for what you do everyday... last year the same thing happened to him, and he was intibated for a month because of collapsed lungs from a cold that turned into full pneumonia within a day. I am 17 and he is going to be 16 soon... research is getting so advanced... I hope it not only benefits the lives of me, him, and your little Shira, but every other person fighting this. =] She is adorable.
ashiz590 4 years ago
I know someone with SMA they are 17! :) She is in my prayers!
SeaverBFriend 4 years ago