Grace & Mayci
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My daughters both have mito disorders. One has Complex II and the other has SCAD...along with a slew of other medical diagnosis. You would not know to look at them, but we are now starting to see certain problems appearing. It scares me. They are both teens and I feel so blessed to have them, but I am looking into HBOT now. Thank you for your videos.
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@igotpoet .If you research about the disorder you will find that there are 5 chains in a complex and in order for each to work the need to be able to perform a job which leads them to the next step in the chain all 5 processes must be able to work in order for the body to operate if one part of the chain is malfuncioning or broken then the ones thereafter might as well be useless because they can not perform their function without the one
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@igotpoet yes most children with this disorder are given short life expectancies it varies depending on how many mitochondria are actually affected but children with this disorder are never expected to lead full lives. The doctors here in NY were astounded my daughter made it to ten years old
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@meeknsweet127 i never knew that humans with this disorder don't live very long lives.
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tar arr so cute
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Awee so sweet!:)
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i understand these girls are not sisters they come from 2 different families
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i like the video
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is this mercy me singing
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Are they twins, or are they different ages?
cannonballsax 3 years ago 3
i dont think people understand these girls are not sisters they come from 2 different families and have the same disorder, these children are miracles not all children are so lucky my little girl Kira age 10 passed away 4 weeks ago today and her brother passed a year ago at the age of 6 we werent so lucky we never knew there was a cure but we lived each day with hope and pride they came so far considering a 3-5 year life expectancy
meeknsweet127 1 year ago 2