Relapse of Mantle Cell Lymphoma

Going through chemo in preparation for a stem cell transplant

Category:

People & Blogs

Tags:

• mantle
• cell
• lymphoma
• stem
• transplant
• cancer

[CLAIRELICHTER]

juat diangnosed with Mantle cell and not in treatment yet.  Have my first appt with City of Hope and also across the country at Sloan Kettering. Scared to death.

[ntbradv]

First off, I'm so sorry you have to deal with this. I'm sure it's not the group of people you wanted to join. Second...don't believe everything you read. If I did, I would already be dead. I've relapsed now three times and even relapsed thirty days after a stem cell transplant but am still kicking. It seems as though there is always some other treatment to try. If you have an appt at City of Hope, I suggest you google CancerBanter and write her. Susan was treated at City of Hope

[rmazlin]

How are you doing? My husband was treated at Hackensack University Hospital for MCL, and is now in full remission. It has been a few months since he finished chemo. I hope you are well. Would love to hear that you are okay!

[morgan4xl]

I went for a CAT scan that would determine if I was to be re-chemo'ed. I would have been happy if it was the same size with no growth, but it was much smaller by over a half. I realise that everyone has a diff. "magic bullet", but this seems to be working for me. I'll be going for another CAT scan in a few months and I'm thinking it may be totally gone. I'll report back here with results. Please, anyone in this same boat, contact me here to exchange email and let's talk!

[morgan4xl]

I took matters in my own hands and searched for a safe alternative that may help, dreading a trip back to chemo. I totally eliminated sweets, eat vegtables way more often, but here is what be my magic bullet. I tried raw garlic and one clove made me feel strange and 'out of it'. I pushed the garlic for about 3 mo. until I could eat 20-30 cloves once a week on a steak with very slight effects. Even the bad odor is slight. I think the bad garlic smell is something being forced from your body(cont)

[morgan4xl]

I may have some great news for mantle cell patients. I was diagnosed with stage four mantle cell that was very advanced. There were tumors in my chest bigger than my heart. R-CHOP chemo shrunk it by 90%, but the outlook was bad. I had a stem cell trans at Mayo that put me in 100% remission. I was told that the average remission was 3-5 yrs. My three year check showed a lump in a lymph node. It grew steadily over 9 mo. I was told if it got a bit bigger, I would have to start chemo again (cont)

[CLAIRELICHTER]

Brad, Haven't seen you on youtube lately. I am hoping that you are doing OK and dealing with the return. I guess we have to remember that this is a chronic cancer but hope your last treatment knocked it out.

I will be receiving my Stem Cell Transplant at Sloan Kettering this coming week and really try to be positive in the midst of the chaos this darned thing does to you.

How generous you are to share your process with us.

Please know how many people you have helped.

[vinitasrimal]

hi brad... i hope you are keeping ok... came across your video when i was lookin for info for my mom.. she is a mantle cell lymphoma patient (in the leukemic stage).. she is advised by docs to be on wait and watch, no treatment. her cancer seems to be indolent for now.. but am so scared it wil become aggressive any minute... the more i read on this cancer the more worried i am getting.... how have u been?

[Ionny179]

ive followed your journey, mainly because my dad has mantle cell lymphoma and you know youe stuff when it comes to this cancer. im so sorry that the cancer came back. this is the 3rd time right?... i would love to see how your translant goes, my dad is schedualed for a bone marrow transplant but we are still unsure, its just all scary but when i see you, you give me hope! god bless you and please continue to update