Ainsley wearing a PMV. She is doing well until she hits herself in the face with the tube after which she has trouble. Note the sound (or lack of) when she cries. We think her vocal cords slam together when she cries really hard, and then she isn't able to exhale very well. Sometimes we even have to remove the speaking valve. For more information about Ainsley or her medical conditions please see her blog at: http://ainsleyrae.blogspot.com/
aww she is so strong,shes a tough cookie,poor thing
best hopes
armymedic98 7 months ago
see why is it when she goes to cry she cant breath very good but why?
594JLP 9 months ago
:( She be fine she is a tuff cookie poor little one,
Matty3697 1 year ago
awww how sad!:( poor thing,i hope she is alright:(
emogirl78 1 year ago
Aww poor baby!!
JazyGirl26 1 year ago
My daughter Angelique is at CHKD in Norfolk, Va. She currently has a PMV on. I hope to one day hear her as clearly as your sweetheart. Ainsley is very beautiful and I pray she and you will continue to post videos, for you two are truly inspiring.
MsAwesomenessprime 2 years ago
why does she need the pmv. she does seem to get enough air with it.
cherchee 2 years ago
??????????????????????????? 0:59
haillejackson11 2 years ago
I just spent a ton of time reading about Ainsley on her website, and you are right, she does melt hearts with her smile. What a blessing, she is beautiful!
navywife1977 2 years ago 2